I haven’t had a full blown relapse for 3.5 years. I was on tysabri since then and recently (4 months ago) came off to start gilenya/fingolimod.
Since the switch I’ve had a couple of eposodes of severe pins and needs when sitting in the same position for a while, and one time I totally lost the feeling in my lower legs. This evening I had the pins and needs and now my legs feel weak/sore. Has anyone else experienced such symptoms?
I’m really scared that this is disease activity due to gilenya not being as effective as tysabri but I may also be over-reacting!
Thanks for reading.