Picking a new drug

Everyday living
1

So long story short, the last scan had new lesions. I am now being offered some more serious drugs.

The list is;

Mavenclad (neuros hot pick)

Tysabri (ms nurses favourite)

Lemtrada

Gilenya

least side effects is my priority.

I thought id put this post up to hear if anyone has opinions on this mavenclad, as its the only one if not heard of.

2

Hi Raymond

I’ve not heard of that one either, so can’t comment on that. But I was on Ttysabri for quite a few years. I had minimal side effects, just being shattered after having the infusion.But I eventually decided to come off it, because of the risk of the big potential side effect: PML. Because I’d been on it for so long, and my level of the JC virus was high, my neuro put me at about a 2-3% chance of getting it. I could have carried on, but I felt that was getting a bit too risky.

What I always say to people when they’re deciding what to go for is that you can always swap if you don’t get on with it.

Dan

3

Hi Raymond

I’ve only been on Rebif so can’t discus Mavenclad, but in case you haven’t found it, the MS Trust’s MS Decisions site has a page on it. Mavenclad (cladribine) | MS Trust

Also, have you seen thier Decisions aid? MS Decisions aid | MS Trust

Ben

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nice one, thats a good wee page