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Onset liver failure- heart failure- NO NHS MEDS WORK FOR ME - WHAT NEXT CBD?

I have tried all meds the professionals deemed fit- and was even told that although the steroids (iv) caused my heart to stop and have bradycardia- as soon as i had the heart surgery and pacemaker, I could go back on steroids.

NO, In fact they outrightly refused advising I had Secondary Progressive.

I do not reject help or the drugs - however my body does - I am not on anything for the pain - other than occasional co-codomal! Even tried exceptionally strong pain patches - sent me a little doo lalley!!

So im wondering if CBD would help or any other type of natural drug- or anything- rather desperate- but not to become a druggy- have boundaries!

With something as serious as liver and heart failure any advice should really come from the specialists. Definitely be guided by them. do they say WHY the liver failure?

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Hi Charlotte

I’m surprised you’re able to take co-codamol if you have liver damage.

I think you might need to clarify a bit more so that maybe someone can offer more useful advice.

Lots of people do use CBD for pain, but you may need to explain what kind of pain you have.

Also, if you do have heart and liver problems, people would (sensibly) be wary of suggesting any kind of drug to you.

So, please explain your situation, what the problems are with your organs, what drugs have been tried and/or suggested for you and what kind of pain you have. There might even be some non-medication avenues to try to help with the pain.

Sue

hi charlotte

what a quandary you are in.

CBD oil doesn’t come cheap but i’d try it if i were you.

cannabis relaxes the muscles as does CBD oil.

cannabis relaxes the mind so you don’t give a stuff about anything.

CBD oil is unlikely to do the same.

mindfulness meditation helped me, i went on a course at local ms therapy centre called “mindfulness for pain relief”.

there are lots of resources online for mindfulness.

hope you find something that helps.

carole x

Hi Sue I was told- rightly or wrongly that the liver is the only organ that can repair and that I was fine as soon as I came off Capaxone. I am limited with medication my body has major side effects to all- when I couldn’t cope any more with the pain I was in and after trying everything else was put on Bu Trans- and the side effects of that lead to my husband literally removing it from my arm - its very much ying and yang with medication- the positives years ago with capaxone- it kept me going as much as it could - but so dreadful I actually thought it was DVT, after tests it was the liver. You have hit the nail on the head- Ive exhausted NHS medicines- I just need to find an alternative. I don’t smoke and have no intention of smoking weed- but will use CBD.

Maybe you should contact your cardiologist or heart failure nurse to discuss your pain and your heart failure management. As well as RRMS, I have Left Bundle Branch Block, Dilated Cardiomyopathy, severe LV systolic and diastolic dysfunction, Heart Failure and have a CRT-D and numerous drugs to keep my heart functioning and me basically alive. Taking other none prescribed drugs can damage your heart further and I wouldn’t suggest that you take anything without speaking to your specialist team.

Hi Charlotte

In terms of your liver, you are right, it is the only organ than can self repair. And having a drug cause hepatitis is quite scary at first, but once you come off the drug (depending on how long the drug stays in you system for) the liver will correct itself fairly quickly.

I’ve had drug related hepatitis 3 times now, so am always wary about a new drug which is metabolised by the liver. But actually my liver doesn’t react badly to all new drugs, just some of them. So I’m perfectly fine taking paracetamol based drugs like Co-codamol as well.

The previous poster was right though. Self medicating with any drug, legal or not (and CBD is completely legal) when you’ve got problems with your heart and have had liver problems in the past is a bad idea.

So talking about CBD with your cardiologist (assuming you are still under the care of one) is sensible before starting to take anything not prescribed.

Sue