I have had a diagnoses for about six months and above all, the most frustrating thing about it is how it affects my mobility. My right leg is permanently stiff and weak all of the time. In addition I cannot walk for more than about 20-30 minutes flat out before my leg stops working and crumples beneath me. This is the same if I do any mild physical activity such as housework, light gardening, any form of exertion, and heat also brings it on.
My neurologist examined me the other day for about two minutes and said I have mild mobility problems; and he is right as all I was doing at the time was lying on a bed. However, when I have been active and the MS symptoms kick in, it feels far from mild when I can’t move my right leg another inch and I have to sit down and recover.
My question is, how can my mobility problems be labelled as mild when this isn’t a true interpretation of how I am on a daily basis? It’s so frustrating as my right leg can swing from being virtually normal to paralysis in less than an hour. Then, after a rest it’s back to normal again, and so on. It really is upsetting as I often feel a fraud.