Hey, I am new here.
I was diagnosed with RRMS in Jan this year, after starting my journey in August 2018.
My first symptoms that triggered me to get checked out were an eye floater (dark shadow in my eye line) & numb skin on both my calves, I am very clumsy & get brain fog and I know from experience that these signs can be m.s related. (Both my mum and her dad have it & I work with a lady who also has m.s also).
Looking back I think my first actual relapse was when I was 18, my right hand went numb from the wrist down for several months. I couldn’t use it at all. I had lots of tests at the time and it was just never figured out. Eventually the feeling came back around 6 months later but its never been the same.
Right now I still have my eye floater and numb calves, I also have a spasm in the outer corner of my right eye which has been going for for around 10 weeks now, this weekend at lunch time Saturday, my left thigh went numb. I am now covered in bruises as I keep walking into corners of things and not realising.
I am frightened, I have only been diagnosed in Jan this year and already so much is happening. I guess I just wanted to say hey.
I also have a lot of questions. I phoned my MS nurse to tell her about my new symptoms and she says if I am still able to go to work then I need to try and ride it out. I have my treatment appointment next month so she says to wait until then. Is this normal? Do you report your symptoms each time? I am not sure what I am supposed to do now I am diagnosed. I guess some guidance from experience would be handy here.
I have tried to explain my fears to my partner that I might not get the feeling back, but I end up frustrated with him because he doesn’t understand or he comes across as insensitive. I know he wont truly understand so I need to learn not to get frustrated. How does everyone else cope with this, have you any useful tips or do you have super partners?
Thanks for reading x