Hi, I still don’t know what I have but this is some of what’s happened since January.
Back in January I had a strange heavy feeling in my left leg and arm as well as sparkling on my left forehead.
Initially it was thought a possible stroke but nothing showed up. One unusual thing showed up in my brain on the right hand side on a ct scan and so I was sent for an MRI. My reflexes were also different somehow. No idea in what way and my left leg continued to be very weak.
So I had my MRI and again something shows up but not typical for MS apparently. Multiple scattered hyperintensities and a lesion in the anterior capsulolentocular region. Whatever all that means.
Well since then I have gone from being able to hike any distance to struggle to walk my boys to school that is two minutes away. I regularly freeze up where I can hear and see everything but can’t respond. Last Saturday I froze or completely collapsed with no use of any muscle in my body 5 times. Sunday was twice and I slept the rest of the time. Monday I collapsed in the same way at the school and an ambulance was called. Heart was checked. It’s fine. Blood pressure. It’s fine. Reflexes tested. Sent for another MRI. No major changes. Went home. Next day collapsed poke a tree being felled and yet another ambulance trip to hospital. Again all the tests done. Heart blood pressure blood sugar etc all fine. Urgent appointment to be made to see neurologist. Before I leave the doctor tells me that although the MRI does not show typical whatever for MS all the symptoms I have are apparently. Being woken up by twitching limbs. Head jolting that’s hurting my neck. All apparently MS symptoms.
is it really normal to get these “seizures” for want of a better word so often? It’s ever day. From 2 to 8 in a day ranging in freezing to dropping. Always aware of everything around me but can’t move anything.
So spongy vibrating legs and arms. Walking like I have flippers on. Stumbling. Headaches. Very tired. Slurred speech at times. Cant remember words or the names of things. Brain slows down. My eight year old son calls this my brain buffering. Lol. Heat cold and tiredness make it all worse. Waiting 12 to 14 weeks for this “urgent” appointment with the neurologist. There are other things that have happened but I can’t think for now.
This all is probably very disjointed as I am typing what I remember as I type.
So this is my first post from a confused frustrated individual. Lol. I’m hoping for an answer to whatever is happening soon enough. Trying to stay positive regardless.
Thanks for letting me rave on.