# News of our Nina (Ninagrace) **URL:** \ **Category:** Primary progressive MS\ **Created:** [2 January 2016 13:57 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710 "2016-01-02T13:57:36Z")\ **Posts on this page:** 20\ **Page:** 2
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [3 January 2016 07:04 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/21 "2016-01-03T07:04:46Z")
Thanks Cath! I must confess , I was hoping you were going to tell me you nursed someone who had similar problems! I’ve been taking a rehydrator but it made me smile, it says take one after each bowel movement…I don’t think Boots keep enough in stock for me to do that! I will speak to my Dr again on Tuesday, with the beta blockers and the anti thyroid tablets I must confess I was hoping for at least a tiny improvement by now. The appointment with the endocrinologist is the 20th…all I can think at the moment is how on earth I can manage an hours car journey to Hereford!!! Could be the most fun I’ve had in a while!! take care, love Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [3 January 2016 07:06 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/22 "2016-01-03T07:06:43Z")
Thanks so much Anne, it’s been so lovely to read everyone’s lovely messages, it’s bucked me up no end! take care, Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [3 January 2016 07:09 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/23 "2016-01-03T07:09:52Z")
There’s nothing quite like a hug from Margate Don! Thank you! I know you’ve been struggling too so I hope you’re back on form today. love to you and Heather, Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [3 January 2016 07:14 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/24 "2016-01-03T07:14:17Z")
Pat, you are my superstar, thank you so much for your thoughtfulness, how would I manage without my beautiful snow leopard? take care, love and hugs back to you, Nina xx ---
**Author:** ![IanD](https://avatars.discourse-cdn.com/v4/letter/i/f05b48/32.png) [@IanD](https://forum.mssociety.org.uk/u/IanD)\ **Post date:** [3 January 2016 09:20 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/25 "2016-01-03T09:20:17Z")
Get well soon, best wishes. Ian ---
**Author:** ![Higgs](https://avatars.discourse-cdn.com/v4/letter/h/977dab/32.png) [@Higgs](https://forum.mssociety.org.uk/u/Higgs)\ **Post date:** [3 January 2016 09:45 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/26 "2016-01-03T09:45:20Z")
Sending you love and strength and hope you are feeling much better soon … ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [3 January 2016 12:54 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/27 "2016-01-03T12:54:25Z")
ah, innit lovely when so much care and thought is voiced here. We`d all be so lost without this forum, innit! pollx ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [3 January 2016 16:16 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/28 "2016-01-03T16:16:07Z")
Thanks Ian, hope you’re keeping as well as possible. take care, Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [3 January 2016 16:16 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/29 "2016-01-03T16:16:59Z")
Thanks so much! Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [3 January 2016 16:23 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/30 "2016-01-03T16:23:18Z")
It’s incredible Poll! Can’t imagine there could be another forum to beat it. Such lovely people! Nina xx ---
**Author:** ![mrsJ](https://avatars.discourse-cdn.com/v4/letter/m/5e9695/32.png) [@mrsJ](https://forum.mssociety.org.uk/u/mrsJ)\ **Post date:** [3 January 2016 18:12 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/31 "2016-01-03T18:12:30Z")
very true Nina, this lovely gang have helped me feel not so alone…love them all. J x ---
**Author:** ![Min](https://avatars.discourse-cdn.com/v4/letter/m/7c8e57/32.png) [@Min](https://forum.mssociety.org.uk/u/Min)\ **Post date:** [3 January 2016 18:21 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/32 "2016-01-03T18:21:55Z")
Just a thought Nina - you can add squash to the rehydration solutions as they can be a bit distasteful, just choose something that doesn’t make you go like prune juice does. And you don’t need them quite as often as they suggest, diarrhoea doesn’t usually last as long as yours. Take care Cath x ---
**Author:** ![Cinders](https://avatars.discourse-cdn.com/v4/letter/c/dfb087/32.png) [@Cinders](https://forum.mssociety.org.uk/u/Cinders)\ **Post date:** [3 January 2016 18:33 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/33 "2016-01-03T18:33:52Z")
Hi Nina Sorry you are going through a bad time. I had a partial thyroidectomy 22 years ago and the radiation treatment about 10 years ago after the bit left in started to work on its own again and my levels went sky high. I felt really ill but did not have the diarrhoea or MS to contend with at the time so can’t image how you’re feeling. From what I can remember on the journey home I had to sit in the back of the car on the opposite side to my partner (driver) and I only had to sleep in a separate bed for 1 week (was quite nice actually lol) but couldn’t see my nephews and nieces for 3 weeks (this was really hard). I could have gone back to work after 1 week but one of my colleagues, who I sat next to,was pregnant at the time and it would have been dangerous for her. I’ve been on thyroid replacement (thyroxine) for the last 22 years and I know we are all different but i did start to feel better once they got me back on the right dosage. Hope everything goes well and you are feeling better soon. Hugs Cindy x ---
**Author:** ![Steve\_Snore](https://avatars.discourse-cdn.com/v4/letter/s/c0e974/32.png) [@Steve\_Snore](https://forum.mssociety.org.uk/u/Steve_Snore)\ **Post date:** [3 January 2016 18:52 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/34 "2016-01-03T18:52:29Z")
Hello. Thank you Pat for passing on the news. Nina I hope you are able to come through this condition. You have been an entertaining, honest and often inspirational voice on this forum. Much love and good wishes, Steve x. ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [4 January 2016 12:18 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/36 "2016-01-04T12:18:55Z")
It was a real lifeline to me when I found it Mrs J…id had MS for many years and felt very alone but now I know there’s always a friend nearby if I need it! Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [4 January 2016 12:28 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/37 "2016-01-04T12:28:25Z")
Thanks Cath…I do add a dash of Squash. I’ve avoided anything and everything that could be classed as something that “helps you go” in fact I’ve tried to eat things that are binding such as eggs but it hasn’t had any effect! . I’ve been having one or two packs of the rehydrator a day…the pack says after every bowel movement but I’d need a bank loan to cover the cost if I did that!! I see the specialist on the 20th and speak my Dr tomorrow so we shall see what they say! Thanks again so much for your thoughts. Nina X ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [4 January 2016 12:56 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/38 "2016-01-04T12:56:51Z")
Thanks Cindy, I think as you say the problem is not only having MS but I also have IBS quite badly too so all three things are fighting furiously. My husband and I have recently started sleeping in separate bedrooms as I sleep so badly I was making his life a misery, so that’s not a problem the fact that I can’t see my grandchildren will be hard but they all message and face time me so I’m sure it will fly by. The really hard thing will be my dogs…they never leave my side! There is a little holiday cottage next to us that is never used in the winter so my husband will go there with the dogs. It’s the only thing we can think of as they are so used to being allowed to run wherever they want…closed doors inside the house are not something they are used too. That way my husband can pop back and forth and hopefully they will think they are on a little holiday with him! Thank you so much for all the information…it’s a big help to know how it went for others. Take care, Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [4 January 2016 13:00 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/39 "2016-01-04T13:00:20Z")
Steve, what a lovely lovely message…it’s made my day! Thank you SO much Happy New Year to you and your family, love Nina x ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [4 January 2016 13:13 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/40 "2016-01-04T13:13:30Z")
Hi Val, My sister in law chose to not have the iodine treatment and simply waited for the medication to work. She was lucky enough at the end of the treatment to have normal levels and not have to take thyroxin. It is certainly something I will ask the consultant about. thanks for taking the time to advise me, I’m very grateful to everyone for taking the trouble to message me! Nina X ---
**Author:** ![shellyonthebeach](https://avatars.discourse-cdn.com/v4/letter/s/53a042/32.png) [@shellyonthebeach](https://forum.mssociety.org.uk/u/shellyonthebeach)\ **Post date:** [4 January 2016 14:37 UTC](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710/41 "2016-01-04T14:37:14Z")
Hello Nina, I’m so sorry to hear that you are poorly, I wish that i had some good advice, unfortunately i don’t but i really hope that you feel better soon. Michelle and Frazer xx Ps Thanks Pat, you are so kind looking out for everyone on here xx [Previous page](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710.md?page=1) [Next page](https://forum.mssociety.org.uk/t/news-of-our-nina-ninagrace/8710.md?page=3)