Newly Diagnosed / help

Just been diagnosed today with ms…I’m only 17 years old and to be honest I’m not sure what to expect. I’ve had optic neuritis in one eye which I have now almost fully recovered from but I don’t want to have severe symptoms that will affect my life in the future. Will I still be able to do things normally?

Blimey, that is big news at 17.
The short (and brutal) answer to your question is no body knows. A longer answer from me is that I was diagnosed in 1991 and I am still having a great time. I have had a reasonable career and life despite many many new “normals” For me there have been some horrible crappy times and some amazing brilliant times, just like most “normal” people, so my suggestion to you is try to build a team of friends family and medical professionals who can help with the naff bits and celebrate the great bits. Look after yourself with diet and exercise (I still have not cracked this bit yet ) This place is good to get some advice from many people who have useful experience and empathy to share.
Wishing you all the best


I was 30 when I was diagnosed - I’ve continued Nursing, been to University and got BSc in psychotherapy, specialised in Drug + Alcohol Addiction. I stopped doing that 7yrs ago. I was a Councillor, until May this year after 18yrs and Executive Member for Environment then Planning, Development, Transport + Highways. I was School Governor on 3 School Boards, Chair on one. I was the City of Salford’s Ceremonial Mayor 2019/20.I have holidayed in France every year for 32years, sometimes 2+3 times a year and I am in a loving relationship for 32yrs before diagnosis and continuing. It was in 1996 I got the diagnosis and 10yrs or so before got symptoms and needed medication. So in short, you can still achieve but right now you need to sit and breath and any planning for what happens can start tomorrow.

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Excellent answers. Yes, you will have to learn to live with uncertainty. But with luck you’ll be given a brilliant drug to stop any nasty relapses and you will be able to live your life just as you’d planned before this diagnosis.

I’ve had MS for 24 years and like Mick, have had crappy times and brilliant ones. Like Mick and Charlie, I worked hard and did well in my work.

Wait for a few days, talk to your friends and family about how the diagnosis makes you feel. Then talk to your MS nurse about disease modifying drugs. These are designed to reduce the number and severity of relapses. They will help you to live a ‘normal’ life. By which I mean an individual, random, unknown life.