I was diagnosed on Wednesday but I still have to go back for a day of tests including a lumbar puncture, MRIs and evoke potentials tests. I’m really confused as to why it’s all necessary, particularly the lumbar puncture if the neurologist has already diagnosed me.
I’m also really struggling with anxiety. I have mental health problems already, including OCD, and the uncertainty of all this is making it very hard to control my anxiety. The neurologist wants to speak to my psychiatrist before we make a decision about which DMD to go on as he doesn’t want it to mess up my mental health. I’m not very good with uncertainty as it makes my rituals a lot worse but that’s basically what I’m going to have to deal with for the rest of my life now.
I took the news at the Neuro appointment well at the time as I was expecting it but as time goes on I’m getting more upset about it. Feeling a bit sorry for myself tonight I’m afraid.