New to the group! Is anyone else dealing with intrusive, obsessive, horrible thoughts?

It’s such a relief to find this group. I’ve had so many MS symptoms for so many years. I knew. Medical professionals would not listen to me. Instead, they addressed my symptoms apart from each other. I’ve finally got a diagnosis. But now I have something that’s never happened to me before—these horrible and intrusive thoughts. My research also connects this to MS and changes in the brain. I have an appointment with my neurologist. I’m wondering if anyone else has experience with this and if so, do you have any coping mechanisms to help mitigate the fear and anxiety that I’m experiencing? Thank you!!

Hi Kells, welcome

I guess it is not common, and why you’ve not had a reply. I’d suggest you discuss it with your neurologist and your GP. It may be that CBT or similar will help.

Everything that happens to us affects our thinking and behaviour, and a dx of a chronic progressive neurological disorder is one of life’s biggies by any standards. So it’s no surprise if you feel a bit s**t, even if you saw it coming. I’m not saying that MS brain damage isn’t directly affecting something in there - I have no basis on which to say that - I’m just saying that bad thoughts and feelings can be a perfectly healthy and rational approach to stimulus and no necessarily some sinister MS-related brain damage changing your personality. So don’t despair. Getting one’s head around an MS dx is not quick and it’s not pretty and it’s definitely not fun. You’re in the thick of it right now, and that’s a bad place to be and no short-cut out, so don’t think you’ve missed a trick because there isn’t one. Most of us on here have been there and carry the scars. Don’t suppose you are not dealing with things in the right way, either. There isn’t a right way, and you are dealing with them in your way.

Most of us find that things don’t keep on feeling his bad, truly they don’t. Hang on in there, and I hope that you soon get through the worst of the bad weather and see a glimpse of brighter skies ahead.