New to the forum, MS/CIS sufferer & Brabio user

Welcome and introductions
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Hello all, my name is Linda, I’m 37 from the UK and was diagnosed with MS on the 1st April 2025 (the irony!) I was then informed it was Clinically Isolated Syndrome but for all intents and purposes would be treated as MS.

I started Brabio injections on 5th September 2025 (last week) and currently have them 3 times a week for the foreseeable.

My journey to diagnosis started as a trip to the GP regarding fertility.

My partner and myself have been together over 10 years and letting nature do it’s thing was no longer working for us as the big 40 approached. We knew it wasn’t going to be straight forward as I have PCOS but we were prepared.

At the time I’d noticed an urgency relating to my bladder which I put down to getting older and I also had pins and needles in my right hand that would come and go. Again I didn’t think much of it and ignored it.

Upon my refferal to the hospital I ended up going through Endocrinology, Opthalmology and Neurology. In short I had multiple blood tests that led to multiple MRI’s that showed a lesion on my pituitary glad and 3 spots of inflammation. This then resulted in a lumbar puncture and then the MS/CIS diagnosis.

I hope that all makes sense. I’m happy to answer any questions if not!

I’m hoping joining this forum I’ll be able to come to terms with and understand my condition better, but failing that making new friends wouldn’t hurt!

Thanks for reading my mini essay!

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Hi Adnill2

So sorry to hear you have been diagnosed CIS, let’s hope it is a one off episode and doesn’t return!! Wow it sounds like you are experiencing a tough time all round. I’m PPMS so of no real help in your scenario but I just wanted to reach out and give you my very best wishes. I hope you’re being supported and looking after yourself.
There are lots of amazing people on this forum so you’ve come to the right place to ask questions on my opinion

Take care

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Hi,

That does sound like more than you would have bargained for out of a trip to the GP on fertility… welcome to the forum.

It does sound like your MS team are on the ball: great that they are treating you from CIS and not doing nothing while they wait to see if it progresses further. There does seem to be a belief now that early treatment is more effective. So if you’ve caught yours really early, that’s great.

Your initial symptoms are very much like mine were - and if it’s any comfort, I’ve been stable since MS diagnosis a couple of years ago.

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@BlinkingMS @Leonora

Apologies to you both for my long reply time. I worry too much about saying the wrong thing that I end up been silent instead and making myself seem rude. :woman_facepalming:t5: Thank you both for the warm welcome, which is truly appreciated, and also for the kind words.

I feel my diagnosis was the salt in the proverbial wound.

Hope you are both well

Linda P xxx