# New here and New to PPMS **URL:** \ **Category:** Primary progressive MS\ **Created:** [16 June 2016 13:26 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242 "2016-06-16T13:26:01Z")\ **Posts on this page:** 20\ **Page:** 2
**Author:** ![Poppy6488](https://dub1.discourse-cdn.com/mssociety/user_avatar/forum.mssociety.org.uk/poppy6488/32/79_2.png) [@Poppy6488](https://forum.mssociety.org.uk/u/Poppy6488)\ **Post date:** [28 June 2016 13:15 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/21 "2016-06-28T13:15:29Z")
Cheers Pam. Good to know there is life after ppms, “though not as we know it”! ---
**Author:** ![farr13](https://avatars.discourse-cdn.com/v4/letter/f/b2d939/32.png) [@farr13](https://forum.mssociety.org.uk/u/farr13)\ **Post date:** [28 June 2016 17:56 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/22 "2016-06-28T17:56:52Z")
Hi newbys and welcome.My advise is short but i try to not think too far in advance just take one day at a time.I can feel terrible on the morning and later not bad,crying one minute and laughing the next.Just come on here and laugh and cry with us,we are here for you.Everyones symtoms are different Jo x ---
**Author:** ![albrecht\_durer](https://avatars.discourse-cdn.com/v4/letter/a/ccd318/32.png) [@albrecht\_durer](https://forum.mssociety.org.uk/u/albrecht_durer)\ **Post date:** [28 June 2016 18:13 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/23 "2016-06-28T18:13:15Z")
This is great! The 15% of people with MS Club. May I propose a change of the meaning of PPMS to Positive Personalities Make Something? Let’s go! Anthony ---
**Author:** ![Fugazi29](https://avatars.discourse-cdn.com/v4/letter/f/e68b1a/32.png) [@Fugazi29](https://forum.mssociety.org.uk/u/Fugazi29)\ **Post date:** [28 June 2016 19:39 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/24 "2016-06-28T19:39:43Z")
Crikey, Thank you so much for your replies, I really appreciate people taking the time to chat and offer their support. I like Anthony 's definition, my wife thinks that I’m not taking the diagnosis seriously but where would the fun in that be I especially enjoyed the moment I thought that I had stopped peeing but hey oh best not to wear light trousers!!! Chris ---
**Author:** ![albrecht\_durer](https://avatars.discourse-cdn.com/v4/letter/a/ccd318/32.png) [@albrecht\_durer](https://forum.mssociety.org.uk/u/albrecht_durer)\ **Post date:** [29 June 2016 07:09 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/25 "2016-06-29T07:09:40Z")
Rule 1(a) of PPMS Club: Never, ever, not if St Peter himself appears, gives you a wink and says “Allright, just this once”, should you ever wear light trousers. ---
**Author:** ![farr13](https://avatars.discourse-cdn.com/v4/letter/f/b2d939/32.png) [@farr13](https://forum.mssociety.org.uk/u/farr13)\ **Post date:** [29 June 2016 09:11 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/26 "2016-06-29T09:11:04Z")
That was one of the first pieces and one of the best pieces of advise somebody gave me at the start ,i always wear black trousers.Ive got about 6 pairs (i have plenty of accidents).Thers always plenty of good advise on here.Jo x ---
**Author:** ![albrecht\_durer](https://avatars.discourse-cdn.com/v4/letter/a/ccd318/32.png) [@albrecht\_durer](https://forum.mssociety.org.uk/u/albrecht_durer)\ **Post date:** [29 June 2016 09:39 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/27 "2016-06-29T09:39:15Z")
Yup. Black’s good. And brown. Preferably with elasticated ankles. They keep the bits from the inside, inside. ---
**Author:** ![Torlyn](https://avatars.discourse-cdn.com/v4/letter/t/b9bd4f/32.png) [@Torlyn](https://forum.mssociety.org.uk/u/Torlyn)\ **Post date:** [29 June 2016 11:38 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/28 "2016-06-29T11:38:19Z")
Hi folk, Jumping in, new member. Diagnosed with PPMs a few weeks ago, just getting to grips with it. 41, had always been very active, and all of a sudden, my body is rebelling. Glad to see that not only there is a very informative space for us, but that you guys retain humour ---
**Author:** ![farr13](https://avatars.discourse-cdn.com/v4/letter/f/b2d939/32.png) [@farr13](https://forum.mssociety.org.uk/u/farr13)\ **Post date:** [29 June 2016 12:50 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/29 "2016-06-29T12:50:28Z")
Thats hard as well not being able to do the smallest of things we took for granted before.By the way welcome torlyn.Jo x ---
**Author:** ![skippysprite](https://dub1.discourse-cdn.com/mssociety/user_avatar/forum.mssociety.org.uk/skippysprite/32/912_2.png) [@skippysprite](https://forum.mssociety.org.uk/u/skippysprite)\ **Post date:** [29 June 2016 12:54 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/30 "2016-06-29T12:54:00Z")
Hi Torlyn welcome to our “gang” of lovely people, probably the club you wouldn’t have chosen to join, but there is a worthwhile life to bee had even with ppms. take one day at a time, listen to your body and be kind to yourself, you will cope. look forward to seeing you on the forum. Pam x ---
**Author:** ![Torlyn](https://avatars.discourse-cdn.com/v4/letter/t/b9bd4f/32.png) [@Torlyn](https://forum.mssociety.org.uk/u/Torlyn)\ **Post date:** [29 June 2016 12:54 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/31 "2016-06-29T12:54:40Z")
Cheers, been reading a lot of great stuff here, and it’s pretty much a test run for me, before I ‘‘come out’’, as so far only my partner knows. (and the DVLA 😛 ) ---
**Author:** ![nindancer](https://avatars.discourse-cdn.com/v4/letter/n/cc9497/32.png) [@nindancer](https://forum.mssociety.org.uk/u/nindancer)\ **Post date:** [29 June 2016 13:58 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/32 "2016-06-29T13:58:36Z")
OK, so many newbies I’m losing track! A big hello & welcome to our gang Sonia x ---
**Author:** ![Fugazi29](https://avatars.discourse-cdn.com/v4/letter/f/e68b1a/32.png) [@Fugazi29](https://forum.mssociety.org.uk/u/Fugazi29)\ **Post date:** [30 June 2016 05:49 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/33 "2016-06-30T05:49:26Z")
Looks like im going to be fashionable in black from now on, …now where did I leave my 1972 Black Sabbath T shirt ? ---
**Author:** ![Snow\_Leopard](https://avatars.discourse-cdn.com/v4/letter/s/e79b87/32.png) [@Snow\_Leopard](https://forum.mssociety.org.uk/u/Snow_Leopard)\ **Post date:** [30 June 2016 08:23 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/34 "2016-06-30T08:23:17Z")
A quick hi to our new members of the gang! Very glad you found us. You couldn’t be in a better place for advice and support…and friendship! Pat xx ---
**Author:** ![albrecht\_durer](https://avatars.discourse-cdn.com/v4/letter/a/ccd318/32.png) [@albrecht\_durer](https://forum.mssociety.org.uk/u/albrecht_durer)\ **Post date:** [30 June 2016 13:01 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/35 "2016-06-30T13:01:23Z")
Hello Torlyn, Now that you’ve passed the audition I’d like to offer you our special New Members Pack. Goodies include:- - “Give me Strength” T-Shirt. - Male catheters sponsored by Durex. - Walking frame courtesy of British Olympic Committee. - and a signed copy of the Motobility Vehicles Guidebook (a special thank you to Lewis Hamilton). Just send me your bank code, account number, PIN, star sign, blood group, memorable date & we’ll do the rest. You’ll see me around Torlyn. But not if I see you first. Anthony ---
**Author:** ![Torlyn](https://avatars.discourse-cdn.com/v4/letter/t/b9bd4f/32.png) [@Torlyn](https://forum.mssociety.org.uk/u/Torlyn)\ **Post date:** [30 June 2016 13:08 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/36 "2016-06-30T13:08:18Z")
Amazing offer, thank you very much, would you be interested in a payment in bridges? ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [30 June 2016 14:19 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/37 "2016-06-30T14:19:07Z")
My first “accident” just prior to dx was in a pair of beige silk trousers…they turned dark brown and I was in a very public place…talk about red face. My second “accident” just post dx was in the same wretched pair of trousers. They’ve long since been relegated to the bin and the continance nurse has become very well known to me! Hey ho! Nina ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [30 June 2016 16:42 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/38 "2016-06-30T16:42:42Z")
Hello other new people’s ---
**Author:** ![albrecht\_durer](https://avatars.discourse-cdn.com/v4/letter/a/ccd318/32.png) [@albrecht\_durer](https://forum.mssociety.org.uk/u/albrecht_durer)\ **Post date:** [1 July 2016 09:07 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/39 "2016-07-01T09:07:13Z")
Bridges? I may be insane but I’m not an idiot. I suggest you set up a Civil Engineering Chapter. ---
**Author:** ![Torlyn](https://avatars.discourse-cdn.com/v4/letter/t/b9bd4f/32.png) [@Torlyn](https://forum.mssociety.org.uk/u/Torlyn)\ **Post date:** [1 July 2016 09:26 UTC](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242/40 "2016-07-01T09:26:18Z")
Um, then could I interest you with a massive stack of Remain leaflets, barely used? [Previous page](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242.md?page=1) [Next page](https://forum.mssociety.org.uk/t/new-here-and-new-to-ppms/31242.md?page=3)