I have been diagnosed with MS a couple of weeks back when I went private. Now I have seen an NHS neurologist who has referred me to an MS team. But the team cannot see me for 3 months. What should I do in the interim?
Learn as much as you can about MS, the variant you have, your specific symptoms, the possible treatment options, so that you can ask the best possible questions of your MS Consultant when the appointment comes around. You may only get one meeting a year with the Consultant, so make it count!
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It is a pity you have to wait, but you can make a virtue out of necessity by doing your homework on the main part of this MS Society site and other reputable sites like the MS Trust. It a strange way, it might actually be quite helpful to have a chance to let it sink in for a bit before having the discussion about treatment options etc. Right after dx, a person’s head tends to be spinning a bit, and that makes it hard to marshal one’s thoughts. At least this way you’ll be better prepared to make that appointment count, as GCCK says.
I am sorry about your dx.
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Thank you Alison for the advise and support!
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Thank you for the advice. Will be researching as you suggested and understand it in more detail. Really appreciate it!
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Good advice already given. The only thing I would add is the changes in your symptoms over may help with a better diagnosis. In my own case being an older man I could have been labelled PPMS but as I had improved significantly I won the coveted RRMS.
Diagnosis relies on a synthesis of information from physical neurological examination, patient history, MRI, lumbar puncture, blood tests (predominantly to exclude other causes).
Not everyone has everything and it can take time to derive a firm diagnosis.
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Good point. I am keeping a diary of symptoms date, time and duration. Hope that will aid in a more thorough diagnosis.
Thanks once again!
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