New and overwhelmed

Hello All

I’ve received my MS diagnosis 2 days ago. I had my first attack in August 2021 and I got the diagnosis of Transverse Myelitis. This diagnosis was now changed following new symptoms and a positive MRI scan a few weeks ago. My consultant offered me to chose from one oft he 4 treatment options: Kesimpta, Ponvory, Mavenclad or Ocrevus.
It’s all so overwhelming. I’m still trying to get to terms with the diagnosis and what this means for every day live.
I was wondering whether anyone is on any of these treatments and if so whether you experienced any side effects at all?
I’m also panicking about what this may mean for my children. They’re 3 and 5 years old. I understand this is not hereditary but have read that they have a higher chance of developing MS later in their lives.
Thanks everyone for reading x

Hi there!
welcome to the club we’d rather not join!

I’ve had PPMS for25 yrs and yeh, it can and often is very scary.

MS isnt genetic, but it can be familial. You are bound to be concerned.

I’ve never had any DMDs, but Ocrevus is now offered, with certain criteria.

The best advice I can offer, is get good rest when you can, accept help when it is offered.

Look after yourself as best you can.

Boudsxx

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There’s an MS Soc fact sheet about genes and MS. I do not have children, but think that if I did I would find it reassuring rather than otherwise.

On disease modifying treatment, my experience of 20+ years with RRMS, the best drug to take is the most effective that is offered to you. My main priority is to contain the risks of uncontrolled MS on my health, well-being and life plans. I was a bit slow to switch up from a less effective DMD to a more effective one, and paid the price of that, so I’m always keen to encourage people to avoid making the same mistake: once permanent MS damage is done, it’s done. Staying one step ahead of your MS is the only show in town - if you find yourself playing catch-up, it’s already too late.

I am sorry about your dx.

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I’m new too and have a 5 year old. I think I’m still in denial because I feel fine and always thought I was wasting the time of everyone. I’m torn between treatment. Kesimpter hasn’t been around long but I don’t want to go to the hospital every 6 months. X

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