# Never had MS hug **URL:** \ **Category:** Welcome and introductions\ **Created:** [30 April 2021 14:27 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594 "2021-04-30T14:27:43Z")\ **Posts on this page:** 7\ **Page:** 1
**Author:** ![Debra\_Healy](https://avatars.discourse-cdn.com/v4/letter/d/c2a13f/32.png) [@Debra\_Healy](https://forum.mssociety.org.uk/u/Debra_Healy)\ **Post date:** [30 April 2021 14:27 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594/1 "2021-04-30T14:27:43Z")
Hi my name is Debra. I have PPMS. I was diagnosed 11 years ago. Over the last 3 days I think I’ve had the horrible MS hug. It seems to get worse in the afternoon. I’ve taken paracetamol and am sitting with a hot water bottle. Any ideas on how long these last and any tips on what I can do. ---
**Author:** ![Mogace](https://dub1.discourse-cdn.com/mssociety/user_avatar/forum.mssociety.org.uk/mogace/32/437_2.png) [@Mogace](https://forum.mssociety.org.uk/u/Mogace)\ **Post date:** [30 April 2021 14:43 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594/2 "2021-04-30T14:43:31Z")
That sounds horrid Debra, my limited experience of MS hug was a short term issue, and the only way I could deal with it was via heat pads and very relaxed breathing. Sorry this is not great info, I hope that others can offer more useful advice. All the best Mick ---
**Author:** ![Debra\_Healy](https://avatars.discourse-cdn.com/v4/letter/d/c2a13f/32.png) [@Debra\_Healy](https://forum.mssociety.org.uk/u/Debra_Healy)\ **Post date:** [30 April 2021 14:45 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594/3 "2021-04-30T14:45:08Z")
Thanks Mick. May try the heat pads. Regards Debra ---
**Author:** ![NorasMom](https://avatars.discourse-cdn.com/v4/letter/n/b487fb/32.png) [@NorasMom](https://forum.mssociety.org.uk/u/NorasMom)\ **Post date:** [30 April 2021 15:33 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594/4 "2021-04-30T15:33:42Z")
Mine always ease up a bit if I can lay down flat (no pillow under my head), but like Mick, mine don’t last long. ---
**Author:** ![Debra\_Healy](https://avatars.discourse-cdn.com/v4/letter/d/c2a13f/32.png) [@Debra\_Healy](https://forum.mssociety.org.uk/u/Debra_Healy)\ **Post date:** [30 April 2021 15:58 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594/5 "2021-04-30T15:58:21Z")
Thank you for that tip. I’ll give it a go. Regards Debra ---
**Author:** ![Silver\_queen](https://avatars.discourse-cdn.com/v4/letter/s/e495f1/32.png) [@Silver\_queen](https://forum.mssociety.org.uk/u/Silver_queen)\ **Post date:** [1 May 2021 17:57 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594/6 "2021-05-01T17:57:45Z")
Hi Debra , the MS hug is horrible, it was one of my symptoms that occurred with a huge MS relapse that led to my subsequent diagnosis way back in 2007. My ms hug felt like someone had tied a thick rope really really tight around the middle of my waist. It made breathing difficult, along with movement/mobility. I didn’t wear my bra for a few months which helped. The physio also recommended some gentle yoga type exercises/stretches. I still have the ms hug symptoms to this day , although it’s more stiffness in the back now. I hope you find some relief from this horrible ms symptom , please speak to your ms nurse , they may be able to give you medication and advice on this. ---
**Author:** ![Debra\_Healy](https://avatars.discourse-cdn.com/v4/letter/d/c2a13f/32.png) [@Debra\_Healy](https://forum.mssociety.org.uk/u/Debra_Healy)\ **Post date:** [2 May 2021 07:29 UTC](https://forum.mssociety.org.uk/t/never-had-ms-hug/62594/7 "2021-05-02T07:29:33Z")
Thank you so much for the advice. It really helps to be able to get in touch with people who understand. This forum is a lifeline. Take care 😀