Just had a follow up with neurology and don’t really know where to go from here, I hope you don’t mind hearing me out.
So, here is my shortened version of events
2011- drop foot for 3 weeks, fatigue, pins and needles/numbness diagnosed as bulging disc
2013- fatigue, pins and needles and crushing feeling in my chest with pins and needles to left hand. Taken to A and E, CT angiogram, Echo cardiogram, reffered to cardiologist ( I’m 35 at this point)
Lasted a few days then came back a month later
Cardiologist couldn’t diagnose me so was discharged
Fatigue persisted, stopped going to gym as was getting exercise fatigue ( severely ) and I was an avid gym goer before
Since then bouts of fatigue and pins and needles but put it down to working too much/bulging disc etc etc
5 weeks ago I woke up with both hands numb and both feet and a vibrating feeling inside my body. Severely fatigued, I took time off work
Huge spell of vertigo when I tried to do some mental arithmetic, so much so I spent the rest of the day in bed
Numbness went and changed to pins and needles carried on, buzzing carried on.
Bladder is not emptying properly, I go then I have to go again right after ( urine checked and no UTI)
Full bloods done x 3, nothing shows
Reffered to neuro but wait is long so I went private as now on the 4 week mark and I’m off work more than I’m there and spend most of the day in bed.
Woke up with tremors in both arms to add to the list and a muscle cramp iny right foot that has made walking a bit painful!
Private neuro did head and neck MRI which I’ve just been told are all clear and told it’s not neurological in his opinion.
Now the question is, I still have my NHS refferal for a few months time Inc a head MRI booked.
The private neuro didn’t do spine MRI and when I asked why he said basically it was to save me money as I was self funding ( it’s true I probably can’t afford another!)
Should I try and get my NHS MRI changed to spine ? Could that show anything ?
Should I keep the appointment with the NHS neuro or will the GP cancel that when my private neuro sends him his verdict based on the head scan?
I don’t know where to go from here, I’m fed up with feeling ill and being numb, I feel like it must be all in my mind! I can’t afford not to work but work makes all my symptoms worse
I wasn’t stressed before this episode and don’t have anxiety or depression.
While I am obviously very pleased that my head MRI is clear, I’m also now wondering why I am getting all these neurological symptoms.
Sorry for the long, frustrated post.