# Neurologist letter! **URL:** \ **Category:** New diagnosis and before diagnosis\ **Created:** [27 July 2012 11:36 UTC](https://forum.mssociety.org.uk/t/neurologist-letter/15524 "2012-07-27T11:36:23Z")\ **Posts on this page:** 5\ **Page:** 1
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [27 July 2012 11:36 UTC](https://forum.mssociety.org.uk/t/neurologist-letter/15524/1 "2012-07-27T11:36:23Z")
Hey guys so i went for a check up with my neuro and this is the letter he sent my GP. You think it sounds all good? Just get so nervous everytime i see him cos it reminds me of my diagnosis! Would love to know what you guys think? Much love xx Re: REBECCA DOB 9.12.1985 She is settling down well and, although her colour vision has not returned, her field is better and she now sees 6/9 + 2. I think we will do a visual field next time she comes. We talked mostly about her coming to terms with the diagnosis. She has started a treatment known as LDN - she is going to try from 1mg up to 2mg over the next couple of months and I think she is managing quite nicely. We talked again about whether or not we would use disease modifying agents, should there be a further attack, and that would depend on the timing of the attack; and how she would manage her fatigue without pharmaceuticals. Overall, I am pleased with her progressed. Best wishes. ---
**Author:** ![Vithfari](https://avatars.discourse-cdn.com/v4/letter/v/47e85d/32.png) [@Vithfari](https://forum.mssociety.org.uk/u/Vithfari)\ **Post date:** [27 July 2012 13:13 UTC](https://forum.mssociety.org.uk/t/neurologist-letter/15524/2 "2012-07-27T13:13:34Z")
That seems rather positive, with the optical symptoms receeding and help with fatigue (though I guess that is about management rather than alleviation). It sounds as if the docs are working well for you. ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [27 July 2012 13:51 UTC](https://forum.mssociety.org.uk/t/neurologist-letter/15524/3 "2012-07-27T13:51:04Z")
Thanks, yea i guess it is positive and i was suprised that he was ok for me to go on LDN as i know usually dr’s and specialists are quite anti it. Yea the fatigue is not pleasant!! Do u suffer with it too? ---
**Author:** ![Vithfari](https://avatars.discourse-cdn.com/v4/letter/v/47e85d/32.png) [@Vithfari](https://forum.mssociety.org.uk/u/Vithfari)\ **Post date:** [27 July 2012 21:51 UTC](https://forum.mssociety.org.uk/t/neurologist-letter/15524/4 "2012-07-27T21:51:13Z")
Yes fatigue troubles me too. Ambient temp over 20 and acvtivity are major triggers. I wish a proper trial of LDN would be done - take years though. ---
**Author:** ![flowerfairymin](https://avatars.discourse-cdn.com/v4/letter/f/e480ec/32.png) [@flowerfairymin](https://forum.mssociety.org.uk/u/flowerfairymin)\ **Post date:** [29 July 2012 18:42 UTC](https://forum.mssociety.org.uk/t/neurologist-letter/15524/5 "2012-07-29T18:42:36Z")
Hi Becky - I am investigating ldn. Originally my neuro was pretty ambivalent saying there was no harm he didn’t think it works ,but might have a placebo effect. GP reluctant to prescribe. Emailed neuro to get opinion in writing - now he is changing his mind saying no he doesnt recommend it as might interfere with . Sorry just rereading this thread this doesn’t actually answer anyone’s question Min xx