It sounds like you are SPMS, so it is worth getting a new MRI done. You will gain more NHS evidence which will spare you from having further ESA reviews.
My Neuro never checks me physically either - he just calls for another MRI to see if there is disease progression [which there was] and uses reports from the MS Nurse to judge how active I am at home.
I also have some help from the Community Rehab Team’s OT and physio, which is helpful and I see my GP for my tablets.
I’ve just had a scan of my bladder and kidneys, as I am getting lower back pain which feels like MS to me, but they
want to check this. So I feel I am being assessed in the community by my MS Nurse and GP. But I do ask for this help.
I think they also note whether or not you are having falls, or need to use a wheelchair or scooter or walkers etc.,.
As you decline - falls assessments are important - as 7% of folk with MS die due to a fall. Not mentioned often enough. So much for DMDs!
Anyway - making use of the community healthcare team has helped build a clear picture of my decline - and generated lots of NHS evidence/reports, which was useful to send with my PIP assessment form. They didn’t ask to see me, because I had been seen by many already.
Keep the NHS busy assessing you - in the current DWP climate: “Don’t look an NHS assessment in the mouth!”