Hi all my name is Paul I hope someone may be able to give some advice or help/ point me in the right direction for my daughter.
I am sorry this is a long story but will try and make it as short as possible. My daughter Sacha whom is 20 this year has been suffering with chronic pain for the past six years but regardless of the many doctors and hospital visits she and us the parents where told she had bad migraines and that there was nothing that could really be done other than resting and taking over the counter medication.
Approximately four years ago Sacha could not cope with the pain and started to self-harm and did try to end it all but with counselling came out the other end luckily, regardless of this still had the constant flair up of pain which could last anything up to six weeks at a time but this was just put down to bad migraines. Over the past six years Sacha has been on numerous medications and injections none of which seem to help with her pain, she has had in total 4 cat scans which all have shown to be normal, the doctors just looked and said there is nothing they can do and it is something she would have to get on and live with.
Present day, since January 2018 Sacha has been in constant pain, yes constant with no let up some days worse than others but no matter what doctors or hospital appointments we had Sacha was given some medication and told to rest but would have to get on with it as there is nothing wrong and nothing they can do.
Eight weeks ago Sacha lost all sight and was completely numb on one side of her body my wife and myself rushed her to Basildon hospital whom thought she was having a stroke but this turned out to not be the case so referred Sacha to Southend hospital for an urgent Eye examination which she had that afternoon and it turned out she had lost all sight but for unknown reasons so Southend hospital arranged for an urgent MRI and an appointment with a neurologist. A few days later and we met with the neurologist whom pointed out to us that Sacha has some white lesions and swelling and said he thought that there was a 95% chance Sacha has MS but would need bloods and a lumber punch to be done but this would take around four to six weeks to get the results as it needed to be cultured in the lab, the neurologist stated that Sacha was over medicating herself to try and control her constant pain but said this would have to stop which she did agree to.
Despite the constant phone calls asking the neurologist if he could try and speed up the lumber punch appointment and if Sacha could take any medication as her pain was starting to increase and as parents we could see that Sacha was going into a dark place again but despite this he said Sacha cannot be on any medication but would try and see if he can speed up the lumber punch appointment.
This brings me to the 2nd August 2018 a day that I will never forget, everything was normal well as normal as can be, all said good night and went to bed. I was awoken by my daughter in the early hours 12:30am telling me that she was sorry but had taken 44 co codamol tablets, we rushed her to our nearest Hospital Basildon A&E and was seen by the nurse and told to keep her awake and wait in the waiting area which was approx two and a half hours until we were seen by a doctor whom then proceeded in getting her the urgent treatment for the overdose and then admitted Sacha to a ward to be monitored overnight, the next day Sacha was moved to a different ward where she stayed until the 21st August when she was discharged awaiting outpatient appointments.
During the 19 days Sacha spent in hospital she underwent further tests, a lumber punch was done for MS which came back clear after five days (still not sure about this as we were told it take 4 to 6 weeks for the test by her MS neurologist) Sacha also had MRI scans done but also with contrast, these scans showed more lesions than the MRI scan she had earlier plus we were told that there is swelling around her pituitary gland which maybe a cyst but despite these findings we were all told they cannot help as it would need a specialist which would be an outpatient appointments.
The bit I cannot get my head around and need your help and advice in how I might be able to help her.
Things have been missed in Sacha’s case I can understand things get missed or not treated correctly, but what I do not understand is:
1: How can a hospital and its doctors discharge a patent with a medical condition pending further outpatient appointments investigation knowing Sacha’s medical history.
2: Despite not feeling well Sacha has lost nearly two stone in weight whilst in hospital due to eating very little, she has no hunger tummy rumbles and says she just does not feel hungry at all but despite this the doctors just said she must try and eat but cannot force her to eat.
3: Sacha has a 19 day record showing fluctuating blood pressure and heart rate but mostly low blood pressure and occasionally feels dizzy and disoriented.
4: MS lumber punch results within 5 days, is this possible
Again I am sorry for such a long post and story but just do not know which way to turn, I feel physically sick and numb but it is not about me it is about trying to help for my daughter Sacha, she cannot understand why even after being given morphine and other cocktails of medication it had no effect on her pain other than make her feel sick, she is confused why the doctors cannot explain to her why she has a mass of white lesions in her head if she does not have MS.
Thank you in advance for any help or advice.