Hi newby here. I believe I have undiagnosed relapsing ms for around 25 years. Use to be around every 5 years I’d have weeks of vague ms symptoms, list is to long to type here. My last big lapse was around 3 years ago. Seen 3 neurologists many brain scans and verdict was either no or inconclusive. I’m in week 5 of a relapse and feel that no part of my body is working properly. I’m showing diabetic symptoms but blood sugars are ok. Digestion issues. Peeing like a cow and unquenchable thirst. Loads of dizzy spells and fainting episodes. Chest pain, muscle pains and tics all over my body. Fatigue so bad I can barely get out of bed. Muscle weakness and tingling over my whole body. I had left eye cramp which was so painful but only lasted about 10 seconds. Blurry vision. I’ve had bee stings sensations for 6 years which stay around for weeks then disappear and then back again. My optician noticed eye tics which I was aware of around 4 years ago. I have irregularities on my ecgs. Dips and waves 24/7 atm. Sitting here now my arms and legs feel numb but if I touch them I can feel it. Numb sensation in roof of mouth and throat. Terrible brain fog, people talking to me or telling me stuff that I just don’t hear or retain. But can’t get to see a doctor and then they look at me like I’m mad. Feeling so unwell atm and don’t know where to turn xx
Have you ever had an MRI while you were in the midst of one of your attacks, or are you tested much later? It took me too many decades to get a diagnosis, and I think it’s because my brain lesions were healing themselves by the time I had the MRI’s. Once I found a neurologist to actually listen to me and send me for a test right away, I got the positive result that I needed.
Just a thought. Have you tried taking magnesium supplements? With your irregular ecg and all the twitching, dizzy spells etc this could be signs of magnesium deficiency. Also, are you approaching the menopause? I’m assuming you are a woman as you’re called Sherrie! Perimenopause can for some women have a host of very weird and debilitating symptoms, many of which are neurological type symptoms, similar to what you describe.