As I posted a few days ago, I’ve been doing 15 minutes of balance exercises (standing in a corner with feet close together) for the past week. For the first few days, I saw consistent improvement but today I was worse at doing it. This took me back to learning yoga 23 years ago. I remember noticing, about a year after I started, that my balance was worsening rather than improving. It was very competitive, strenuous yoga (Ashtanga Vinyasa) and we all always expected to improve.
In fact, although I have had improvements in my conditions occasionally, in general I have seen downhill progress of my disease, for many years, before and after diagnosis. Have I had progressive MS for the last 23 years? Is there any way of knowing? Should I get off the Tysabri? I’ve not seen many signs that it is helping - I’m in a much worse state than when I started it three years ago.
Any views welcome - I think these are very hard questions.