Hi I have been on here for a while now and feel it’s time I share my story. I am a 35 year old female who has always led a healthy lifestyle and enjoy exercising on a daily basis. I have an autoimmune condition - alopecia areata that I have had since 12 years old. But this has always come and gone. My symptoms: March 2017 - I suddenly started experiencing burning of the scalp. It felt like someone pouring acid on my scalp. My hair also started falling out. I went doctors and they did the usual bloods. I found out that my iron ferritin was low and was given iron tablets but that didn’t explain the burning scalp. I was referred to a dermatologist who carried out a scalp biopsy and diagnosed me with female hair pattern loss. The burning and hairloss eventually slowed down after a year of onset. I still experience some burning tingling sensation from time to time until this day but no way near to what I experienced early 2017. November 2018 - started getting heart palpitations along with tingling in the arms. I also felt extremely fatigued I felt like something was being stuck in the throat. I actually thought I was having a heart attack. Had a ecg test which came back clear along with bloods. All symptoms cleared up within 6 weeks. Jan 2019 - My right eye started twitching (It still twitches now) I also started getting electrical shock type pain on my right forearm. This is when I started consulting Dr Google. I have never been more terrified in my life. I went doctors and was referred to see a neurologist. I have an appointment in June. Since January my symptoms have mainly been on my arms and have experienced various sensations to aches, tingling, numbness, electric pain, heavy arm and shoulders, burning shoulders and neck. I feel muscle twitching all over my body. I decided due to the long wait on the NHS I decided to see a neurologist privately who specialises in MS. I saw him 2 weeks ago and explained all my symptoms and my history. He carried out a neurology examination and he said everything seems normal. He said that i could have an MRI but it wont show anything. He seemed quiet confident. Due to my anxiety I decided to have the MRI. The MRI was of the brain and cervical spine with no contrast due. The MRI came back clear and the neurologist basically said I dont have MS or any other nasty disease. He said the pains I have been experiencing could because of my anxitey or slight muscle issue from going to the gym. I am obviously happy that my MRI has come back clear but I continue to have the arm pains every single day. I dont know what to do. My question is if my MRI came back clear could I still push for other test like EMG, lumber puncture etc? I feel something is wrong inside. I do suffer from anxiety but can this cause all these symptoms? I feel like everyone is thinking it’s all in my head. I would appreciate your thoughts. Thank you.
I just wanted to reply to say I sympathise - I’m a 36 year old mum of 2 and also been experiencing all sorts of weird neurological symptoms (mainly bladder issues and sensory stuff in my case). My neurologist was also quite dismissive in the sense that he didn’t think it was MS but arranged for an MRI anyway, believing it would come back as clear, which it did. I also had an evoked potentials test which also came back as normal. It’s tough when you don’t have any explanation for things that are happening to your body.
Have you come across FND as a possible alternative diagnosis?