Hi there
I have a friend who has a mother with PR MS and she is desparate for me to make an appointment with the docs to request a referral to Nuero. So, before I look like a complete idiot in front of my doc, I thought I would run it past your guys instead (less chance of looking foolish!) I shall try to be brief, but I apologise if I start waffling.
About 18 months ago now, I got fuzzy vision in my right eye and had problems with colours (especially red). Made appt with opticians who mentioned optic neuritis and requsted hopital appt. 2 hospital appointments later was sent for MRI to check for optical neuritis. MRI was about this time last year and the results showed that at the time of the scan, there was no inflamtion to the optical nerve and NO demylination. Vision never really fully recovered - everything is still a bit fuzzy and I still every now and again have colour differences. It gets worse when I excercise or take a hot bath. Opthamologist said they dont really know what is wrong with my eye (I could go for electrical impulses tests) and if I can live with it, do so and have been discharged.
April last year. All of a sudden and not for very long, lost the ability to speak coherently. Thought it was hilarious at the time as I sounded drunk (I rarely drink), but GP didn’t find it nearly as amusing and sent me to the local TIA clinic in case of a mini stroke. Had all the relevant tests inc ultrasound of corotid artery and was told there was no reason for it so dont worry and call 999 if it happens again. Was discharged.
September last year. Developed palpitations where resting heartbeat was in the region of 120 and on exhertion 150+. Continuously. Sent via GP to cardiac guys. All ECG’s recorded normal just very fast heartbeat. No problems noted on an echo either. Had 7 day ECG and again, all normal, just very fast. All the time. No apparent reason for it. Cardiac thought that maybe my asthma (I am a sufferer) was bothering my heart, referred me to chest and as there seemed to be nothing much to worry about, discharged me. The referred me to chest as…
October last year. Had what was suspected to be a severe asthma attack and was taken to hospital - had another one in December and ended up in hospital again have had a few minor ones in between, but have avoided calling 999. Saw chest doctor who said he didn’t think it was asthma and have been sent for various tests. My symptoms were very tight chest (as if I was being squeeeeeezed) and difficulty breathing and taking deep breaths. It never seemed as if the breaths I were taking were satisfying - for want of a better word. I would get back pain across the left, kind of bra strap height, and have presumed it to be muscular from trying to breathe too much. My ventolin didn’t seem to do much, but the hospital nebulisers did. Have been left very tired and exhausted from the breathing/heart stuff and for a while the very short school run walk was too much for me to cope with. Energy levels have since vastly improved (have good days and bad), but my fitness is still nowhere where it was before Oct.
and lastly, have had for a while an area on my forehead that really really hurts if I touch it. If I don’t touch it, it is ok. It only ever bothers me when I am cleansing my face or lying wonky on my pillow. It is a burning stabbing pain that radiates from the area. But it is absolutely fine if I don’t touch it!!!.
So that is about it really. It all seems a bit silly now I have written it all down. I don’t think it is anything really serious, but it was ringing alarm bells to my friend so I promised I would speak to my GP. I hope I kept it brief enough for you but included enough info to actually make sense. lol.
To Doc or not to Doc???..
All the best.