Please bare with me, this is complicated, I don’t post much, and I’m not too good at sharing, but I’m nearly at the end of my tether.
Although I haven’t seen my nuero since my 2nd mri and lp, I’ve had a couple of letters, confirming lesions, and a positive LP, but I also have a ‘significant’ pineal cyst, which ‘may or may not be symptomatic’, (the LP was also used to check for something to do with the cyst, which was also positive) and therefor he is ‘unwilling to confirm a diagnosis as yet’ and will be writing to a specialist in another hospital ‘for advise as to how to proceed’.
I had a dreadfull reaction to the LP, which triggered a 5 day ‘violent, atypical migraine’, resulting in a day in emergency admissions with sky high blood pressure ( a first, its usually in my boots) double vision, (one above the other, not side by side if you see what I mean!) left side numbness in face, arm and tongue, and was drained of every drop of blood they could extract for every test known to man! It was following this that I got the letter from the neuro about the specialist.
My GP is being cagey, but says that it is his understanding that they won’t confirm an ms diagnosis, and/or prescribe dmd’s because of the possibility of the cyst causing symptoms, and/or being antagonised by dmd’s. And there’s little or nothing they can or will do for the cyst, apart from treat the symptoms. He suggested ringing the neuro’s to try and get some info, but the secretary says they are still waiting to hear from the specialist, who is in another county!
In addition to this, I’ve had 2 x 24hr ecg’s, and an echo for irregular heart beat, and tachicardia, and chest ‘squeezing’. There’s no mechanical heart problem as far as they can tell, the cardiologist suggested it may be to with my neurological probs, and put me on betablockers, (the neuro wanted a copy of the first ecg too) my GP says its probably exacerbated by stress, and tried an anti depressant, to which I suffered a violent alergic reaction, and had to be given massive amounts of valium and additional betablockers to stabalise! I’ve had two massive ‘panic attacks’ at night, which have woken me from my (zopiclone and valium induced)sleep, feeling like I’m being shaken awake, but its internal shaking and squeezing, and pressure on my chest. It takes several days for it all to calm down, then I’m floored by fatigue. On top of that my thermostat is up the creek, I’m boiling or freezing, and my left eye is seeing red as khaki green! And I’ve got terrible jaw/tooth ache from clenching my teeth so tight.
I’m sorry to go on so, I’m feeling so crappy, scared, exhausted. Nobody seems to be sure if its symtoms causing anxiety, anxiety causing symptoms, all symptoms, or all anxiety! Least of all me!
Anybody else here have experience of cysts? Anxiety/panic, and/or any of the above?