Hi everyone this is my first post I’ve just recently joined this blog. My name is Nikita I am 28 years old been dealing with rrms for 11 years now and just recently been told am now highly active rrms I’ll be starting orcrevus March 31st. I also have type 1 diabetes and currently being tested to see if I also have Lupus or not. Am sure there’s other people on here feeling the same as I am right now just wanting to rant as I feel like am having a mental and physical burnout wanting to scream with frustration… would love to get to know other people with MS know how you guys deal with it XOX
Hi Nikita.
I hope you don’t have Lupus - it sounds like you’ve got enough to be going on with already. I have type 2 diabetes but my next (hopefully final) review is due next month. I’ve been careful with my diet for a while now which seems to have been helping with the diabetes and, can’t have been doing the MS any harm either
.
Apart from that I try to plod on as normal as possible all the time - I’m doing the laundry today and using the washing line while the weather is nice.
It’s not a thrilling day but, it keeps the boredom away ![]()
Take care mate.
Jon.
That is really bad luck to have so many autoimmune messes to mop up.
MS is the only thing I have personal experience of, and my MS, like yours, switched up a gear after some years and became very active too. I was put on natalizumab, and I have to say that it has kept my MS quiet for more than 15 years now. Those highly effective treatments really can stop very active MS in its tracks, and I hope that you have a similar experience. You have plenty on your plate without your MS playing up too.
Hi thank you for your reply
am glad to hear your treatment is working for you and hopefully keeps working for as long as possible. I was torn in which treatment to go for between cladribine or orcrevus infusion but decided to pick orcrevus and hopefully my body takes to it well. My body doesn’t take any form of medication well at all so am really hoping am not going to regret starting a more higher treatment. I was on copaxone injections 2 years ago and could only tolerate them for 7 weeks it targeted my sciatica nerve and now I’ve been left with permanent pain lower back . MS is definitely a roller coaster of emotions and struggles but it has also taught me appreciation for the small things in life
Thank you for your reply
I hope all goes well for you in treating the type 2 diabetes keep that mindset positive and motivated and am sure you’ll beat type 2
. Really is something you have to just breathe and take these problems day by day.