Hi all,
Just a quick one that I hope someone can help me with.
Soon, I will be moving to the next town, and although it’s spitting distance away it will fall under a different NHS trust. The problem is, I really like the system I am under now, the nurses are brilliant and the whole system appears to be great. I get my Techfidera from this trust too. The place that I’m moving to is a place I used to live so have to experience of the service (5 years ago) and my mother, who has SPMS, is under them too and they just seem awful (probably because of them being over subscribed and the under funding).
Is is it possible to stay under the care of my current NHS trust?
I hope that made sense.
Simon
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It shouldn’t be a problem as you can be treated anywhere in England. Being able to get there is all that matters 
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Hi Simon
Yes, it shouldn’t be a problem. Years ago, I was seeing a neurologist at the National Hospital in Queens Square, London (the lovely Dr Giovanonni) when I moved out of London to the South Coast. I remained under the care of the National while it was easy and sensible to get there. Once it became less easy to get trains etc, I transferred to a doctor near to home. From there I was referred to yet another neurologist, in a different area again, easier to get to than London but more specialised than the local hospital.
So, my thinking is that you continue to see the neurologist you’re happy with so long as it’s practical to get there.
Sue
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I had a few issues transferring NHS Trusts. I was naive at the time (about MS and NHS care) and was diagnosed with CIS by the first trust. The first trust didn’t transfer any of my MRI scans or medical notes to my new trust (and my new trust didn’t chase for them). I had an appointment with a general neurologist at my new trust and he said he had not seen my scans or notes. He said all he knew was I had inflammatory looking lesions on my brain and C spine.
At that appointment with the new trust the general neurologist diagnosed me again with CIS (when I had definite RRMS). I then had a further appointment with another different general neurologist and he diagnosed me with RRMS five months later.
So in hindsight with what I know now I could of been offered DMT’s months earlier.
I have never had my MS under the care of the local (12 miles) hospital.
Instead I attend a hospital 28 miles away run by a different trust.
Interestingly, the hospital I attend is administering the local one.
I expect to transfer next year (after my driving licence renewal).
“My” hospital does not let its MS nurses (2 of them) do home visits.
The local one has one hospital based MS nurse, and two who do home visits (these are “neurology” nurses), but the one who covers my home area is well up on MS.
I always advise people to read the NHS Constitution to check what their rights really are.
Geoff
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