# Most ridiculous thing anyone has ever said to you about MS **URL:** \ **Category:** Everyday living\ **Created:** [15 March 2015 12:19 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507 "2015-03-15T12:19:23Z")\ **Posts on this page:** 9\ **Page:** 3
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [17 March 2015 21:51 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/41 "2015-03-17T21:51:44Z")
Read this with interest, a few giggles at times and then anger at others!! The best I can offer was said about me, not to me, by my 11 year old school at school “my mum has S & M” guess the teachers think differently of me now especially as they know I am a teacher as well!!! Oh dear!! ---
**Author:** ![annelda72](https://avatars.discourse-cdn.com/v4/letter/a/977dab/32.png) [@annelda72](https://forum.mssociety.org.uk/u/annelda72)\ **Post date:** [17 March 2015 22:54 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/42 "2015-03-17T22:54:30Z")
My 2 children (age 7 and 11) genuinely do believe I have M & S! Often wish I could return my right leg and exchange it for a new one… ---
**Author:** ![maryrie](https://avatars.discourse-cdn.com/v4/letter/m/ecd19e/32.png) [@maryrie](https://forum.mssociety.org.uk/u/maryrie)\ **Post date:** [18 March 2015 05:58 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/43 "2015-03-18T05:58:41Z")
Hi one and all - for years I say “I am wobbly, but sadly not pissed” During the last twelve months although doing physio & special gym (for disabled) I am fastly becoming more immobile - NHS Physio Diana, is brilliant, & the gym hard work, all the weights on 1. Fell flat on my face on the treadmill last week, set to slowest speed, holding on for dear life, still managed to fall flat on my face as I was too slow. Really offended last week, went to a local Indian Restaurant where food is brilliant, but no ramp. Left my faithful scooter (well sign written with LA RUBIA PELIGROSA that’s dangerous blond) outside, and stumbled in with my stick, holding the tables with my other hand. On leaving, the Owner informed my mate that I was obviously very drunk, just as well I didn’t hear him say it, think I would have soon put him right. Take care all - Wonderful to see an MS sufferer doing the Rock & Roll on People’s Strictly last week by the way Mary ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [18 March 2015 10:30 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/44 "2015-03-18T10:30:07Z")
just wanted to say - nice to see you again Sonia, I haven’t seen you on here for ages hun JBK xx ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [18 March 2015 14:58 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/45 "2015-03-18T14:58:25Z")
On telling a friend that I had suspected MS when I was first having tests, she replied ‘Oh, it won’t be that’. Then 3 months later, when I told her I did have MS she tapped the side of her head and said ‘it’s all in here, isn’t it’. I was quite put out at that and said quite loudly ‘I’m not mental, it’s in my nervous system of which my brain is a part’. She then said that’s what she meant, that it was in my brain so I told her to say that then rather than tapping the side of her head which could be taken to mean that she thinks I’m imagining it. We’re more acquaintances now, because within a few days the whole village was gossiping about ‘poor Tracey’s health problems’. It didn’t bother me so much but it was upsetting for my parents that everywhere they went people wanted to talk about it and it had come as a huge shock to them as well so they didn’t need that! You certainly do find out who your true friends are once you have a chronic illness . Another little gem was from my then line manager at work who told me (and you have to say this in the most sickly sweet, simpering voice you can think of) ‘I often think how I would love to have a little nap after work each day like you do, but I simply don’t have the time’. I would have loved to have wiped the stupid grin off her face! I could easily have done a Clarkson on her . I think it would’ve been justified … The most annoying thing is that she had told me, on diagnosis, that she knew all about MS as she had worked at a hospice previously (as a PA though, not as a carer). This comment proved that she knew sweet FA about MS! Grrrr! My son likened her to Dolores Umbridge from the Harry Potter books! Tracey x ---
**Author:** ![alison100](https://dub1.discourse-cdn.com/mssociety/user_avatar/forum.mssociety.org.uk/alison100/32/1019_2.png) [@alison100](https://forum.mssociety.org.uk/u/alison100)\ **Post date:** [18 March 2015 18:36 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/46 "2015-03-18T18:36:10Z")
Not a jury in the world would have convicted you on the manager front, Tracey. And I do think that your manager is a very strong contender for the ‘most ridiculous things’ prize, because it was clearly malicious as well as ignorant, and malignity should surely earn extra marks. Ignorance about MS is really too common to trouble the scorers, so even the most ignorant comment isn’t going to win without a dose of venom to give it oomph, and she clearly has venom to spare… Alison ---
**Author:** ![nindancer](https://avatars.discourse-cdn.com/v4/letter/n/cc9497/32.png) [@nindancer](https://forum.mssociety.org.uk/u/nindancer)\ **Post date:** [18 March 2015 22:55 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/47 "2015-03-18T22:55:06Z")
**JBK** - lovely to see you too Also reading this thread with some shock and sadness but loving the S&M / M&S mistakes! I’d be happy with either but not so impressed with the MS! **Tina** , it sickens me when the pros are so bad - my London neuro winks and grins at me, my GP asks how it’s all going during a call last week and my MS nurse signed her last email with kisses in response to my email to her - it REALLY helps when you feel like the pros are trying to help and are happy to be rooting for you! Sonia x ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [19 March 2015 09:41 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/48 "2015-03-19T09:41:53Z")
Oh, she had lots more where that came from! For example ‘We’re all tired’ and so on. We finally had a complete breakdown in the relationship when she disciplined me over a very minor matter in public! Really good managerial style! I gave those above an ultimatum. Get me out of her department or I go over your heads and file a complaint based on discrimination. I soon got moved and have an excellent line manager now. Understanding and empathy but not sympathy. She tells me that she understands my need to work as much as possible but I must look after myself too. She will even send me home if I look a bit wobbly as she knows that if I push myself then I will be off work for longer. Tracey x ---
**Author:** ![TrippySpice](https://avatars.discourse-cdn.com/v4/letter/t/b5e925/32.png) [@TrippySpice](https://forum.mssociety.org.uk/u/TrippySpice)\ **Post date:** [19 March 2015 15:24 UTC](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507/49 "2015-03-19T15:24:58Z")
I was quite gobsmacked by the MS nurse I saw on Monday who told me that having PPMS is a bit like getting older - we all get a bit wobbly as we get older so it’s not really a big deal. The MS Nurse! Honestly. Suprisingly, I really didn’t find this a helpful way to think about it. [Previous page](https://forum.mssociety.org.uk/t/most-ridiculous-thing-anyone-has-ever-said-to-you-about-ms/7507.md?page=2)