More fingolimod/gilenya news

This blog explains the position with the EMA review. I think the comments are particularly worth reading.

Thanks whammel. I do love that website. It is SO sensible!

Karen x

Changing treatments for a moment, Professor G has some interesting views on fampridine and his comment urges caution.

I haven’t played the talk and I don’t know about increased progression (sounds plausible?), but I can tell you that I tried fampridine and came off it after only 3 doses - it kicked off a seriously scary migraine reaction (for the first time ever, I phoned my husband and asked him to come home from work). Apparently I’m unique(!), but the migraine guy I saw said that he wouldn’t be surprised if more reports of it came through as more people tried the drug. So I guess people with migraine should be cautious? Sample of one though - not exactly reliable!!!


Much as I would like 25% increase in walking ability, I think I am prepared to wait a bit longer and see how this one pans out. The list of possible side effects alone are truly impressive, but I really don’t fancy getting any worse.

You might be a sample of one, but make a lovely anecdote.

From Barts & London again:

“The most common adverse events reported in clinical trials were urinary tract infection, insomnia, dizziness, headache, nausea, weakness, back pain, balance disorder, swelling in the nose or throat, constipation, diarrhoea, indigestion, throat pain, and burning, tingling, or itching of skin”