Hello
my name is jo, new to this… feeling a little upside down with first big relapse… thought I’d try this out as no idea what to do with myself
Hi Jo,
Feeling upside down is not unreasonable. Good comment above. Something I bang on about (ad nausem) is try to build a support network of friends / family & medical professionals so that you can get the best help as and when needed.
This site is also a good source of info / experience and knowledgable empathy.
Good luck
Mick
Hello Jo, Welcome to the Forum, you’ll find it an invaluable source of advice, empathy and friendship. In my opinion the combined knowledge and experience of it’s contributors is worth far more than any neurologist. It’s open 24 hours a day and you don’t even have to make an appointment. Best wishes, Anthony
1 Like
Hello Jo (and JD)
Welcome to the Forum. We would all prefer that we didn’t qualify to join, but now you’re here, make the most of the community. JD is quite right, Dr Google would be struck off were s/he a real doctor. Believe your medical professionals. If you want to know something, look on this site (use the tab ‘About MS’) and/or the MS Trust.
Otherwise, try asking us on here. Again, don’t just trust everything we say, remember that mostly we are not medically qualified, what we tell you is often an opinion, not necessarily 100% reliable. But we will do our best to help out if we can.
Just remember MS is a total git. We are all affected differently. You can’t rely on MS following any rules, it does what it wants, when it wants.
If you’ve been diagnosed with relapsing remitting MS, you should take a disease modifying drug (DMD) if you aren’t already. Otherwise, keep as fit as you possibly can, in particular, try to look after your core strength. And keep as well as you can, eat well, but don’t be a martyr to dietary rules.
Sue
hello jo
welcome to our merry (on gin mostly) band of misfits.
and hello JD.
following on from what you said about accepting help - if you think back to when someone you know was diagnosed with a nasty, you really wanted to help.
accept all help that is offered when it is needed.
sue is brilliant with advice and facts.
our very own agony aunt!
Awwww Carole, you sweetie xx
you are a sweetie too sue dahling!