I am in the process of being diagnosed but I require a lumbar puncture to complete the official diagnosis. The NHS wait is now looking like over 4 months for this and so I wondered if anyone had any experience of being prescribed medication prior to the official diagnosis being done. I understand DMT etc would be unlikely but I am having lots of pain in my feet (burning pain) which affects my walking at times. From research and conversations with my neurologist, I believe this to be nerve pain and understand there are some things that could be prescribed to help. Before I take on the almighty task of trying to contact either my neurologist or get a GP appointment, I wondered if anyone knew if this was something usual to happen, or if I am not likely to have any success if I asked? Thanks!
Hi UnsureMS
Gabapentin/Amitriptyline are a couple of medications that can be prescribed to tackle the neurologic pain (I was prescribed these before I was dx with MS). They have to start slow and gradually build up.
Thanks so much for your response. Very glad to hear you were able to get these before the official diagnosis. Could I ask please, was it your neurologist or GP who arranged this for you?
The initial prescription was via the neurologist but the GP then took over the prescription and process of increasing the Gabapentin to the most effective dose.
I was prescribed amitriptyline by my GP before we had any idea I was heading for an MS diagnosis. They wouldn’t be providing it “for MS” but simply in the hope of alleviating pain. Hope that helps.
That’s really helpful. Thank you for responding
Iv taken gabapentin for 7 years for RLS for my legs . Then 3 months ago i lost control of my right arm and leg i had a bad back . Wife was sick of me moaning of the pain and going limp on one side so she took me to A&E and 5 days later after 2 Mri s and bloods lumbar puncher and 3 doses of steriods got told by neurologists that i have MS so always ask your gp for help my journey started in my legs and feet …but do seak help from you doctor