# looking to build an online support group

**URL:** <https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724>\
**Category:** Everyday living\
**Created:** [7 May 2013 11:07 UTC](https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724 "2013-05-07T11:07:29Z")\
**Posts on this page:** 6\
**Page:** 1

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**Author:** ![gooddad101](https://avatars.discourse-cdn.com/v4/letter/g/c0e974/32.png) [@gooddad101](https://forum.mssociety.org.uk/u/gooddad101)\
**Post date:** [7 May 2013 11:07 UTC](https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724/1 "2013-05-07T11:07:29Z")

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Hi everybody,

I used this forum for the first time today and it helped me enormously. I would like to meet people in the chat room to create an informal support group - people who can talk to each other about whatever is getting them down or up on a given day. I live in Abu Dhabi and have no MS support network at all - Ive got a neurologist who writes me prescriptions and he has a really good nurse but neither of them are available in the way an MS specialist and an MS nurse would be back home. I found today that by having a chat with the MS helpline and exchanging a few messages in the forum, my spirits were lifted and I got things back in perspective. Ive got a mild flu, after having a monster hang over and I have felt like crap for four days. end of story. Ill be better in a couple of days.

Take care and let me know if you would like to form a group.

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**Author:** ![gooddad101](https://avatars.discourse-cdn.com/v4/letter/g/c0e974/32.png) [@gooddad101](https://forum.mssociety.org.uk/u/gooddad101)\
**Post date:** [7 May 2013 11:37 UTC](https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724/2 "2013-05-07T11:37:00Z")

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just ask anyone who is interested - ie you and me so far 🙂 to check tin to this forum as and when they want to and look for a thread with a name of our choosing, leave messages with that name in the header, job done. it will gain the momentum it needs I guess.

what would you like to talk about?

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**Author:** ![chocorange](https://avatars.discourse-cdn.com/v4/letter/c/41988e/32.png) [@chocorange](https://forum.mssociety.org.uk/u/chocorange)\
**Post date:** [7 May 2013 11:51 UTC](https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724/3 "2013-05-07T11:51:51Z")

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hi

theres several set up already-why not join them? ms-uk has 3 sessions per week-easily found in a search…

ellie x

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**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Post date:** [7 May 2013 12:19 UTC](https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724/4 "2013-05-07T12:19:06Z")

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Hi, how would another support group differ from this?

I have several buddies and we pm each other some days, back and forth and we talk about particular things that may be bothering us.

It`s worked ok so far.

I guess you feel out on a limb so far from home, eh?

luv Pollx

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**Author:** ![lapreguiceira](https://avatars.discourse-cdn.com/v4/letter/l/c89c15/32.png) [@lapreguiceira](https://forum.mssociety.org.uk/u/lapreguiceira)\
**Post date:** [7 May 2013 13:10 UTC](https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724/5 "2013-05-07T13:10:11Z")

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Hi, I was diagnosed 13 years ago in Singapore and had the dubious pleasure of being the only person in SE Asia on beta-interferon at that time.

There are others in the middle east with MS, but it is difficult to build a support group.

One of the best things to do is stay here - you’ll find a better cross-section of MSers here (make sure you read the Barts blog as well) and it’s the best online support group around.

I live in Spain now and still drop in here from time to time.

You could (if you wish) start a private facebook site for people in a similar position to you. Experience and experiences count for a lot in MS.

Facebook is great for sharing crappy days and symptoms and your posts don’t move from the front page so quickly.

Finding other expats is the problem - but you never know, you may be lucky and have a great support group very quickly.

best wishes,

K

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**Author:** ![gooddad101](https://avatars.discourse-cdn.com/v4/letter/g/c0e974/32.png) [@gooddad101](https://forum.mssociety.org.uk/u/gooddad101)\
**Post date:** [7 May 2013 13:19 UTC](https://forum.mssociety.org.uk/t/looking-to-build-an-online-support-group/3724/6 "2013-05-07T13:19:12Z")

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I guess I am trying to make connections

thanks for all the messgaes

and see you around
