Some of you may remember me posting about my little nephew, who is not yet 12, who’s been having mysterious fatigue and pain.
Which did ring some alarm bells with me, because some of it’s very similar to things I started off with, years ago.
Anyway, his first consultant reckoned ankylosing spondylitis. I suppose, if I had to choose, I’d consider that a slightly lesser evil than MS, but still not good.
Anyway, today he saw the rheumy, and has been diagnosed with hypermobility. That’s all the news I’ve got, so far.
Hypermobility by itself isn’t an illness - it’s what used to be called “double-jointed”, and, in many cases, is symptomless.
However, I thought that where it was associated with symptoms such as pain and fatigue, it was diagnosed as hypermobility syndrome. Now obviously, he has symptoms, otherwise he wouldn’t have been at the hospital over it. But I’m not clear whether he’s been diagnosed with the syndrome, and if not, why not.
In general, it seems to have a much better outlook that either MS or AS, and especially in children, as it seems it’s possible to “grow out of it”. So even though I’m not 100% convinced we’re in the clear, I’m greatly reassured, for the time being. I’m still sorry he’s living with invisible pain and fatigue at just 11. I was much older than him, when that first became part of life, and I didn’t think it was fair then! Nobody should be having to put up with it at 11.