for example -
right leg goes weak/floppy then recovers -
some years later right leg goes weak/floppy doesn’t recover.
It’s said that the recovery process slows down/stops as the disease progresses – but why ?
Why indeed!
it’s a mystery wrapped in an enigma etc.
On the plus side I have some heavy duty drugs.
Now I have Wet Wet Wet as an ear worm.
Thanks Cracowian there are some horrendous ear worms but this one I like.
xx
Here, here Jackie, me too.
Jean x
I asked this very question to my neuro,
The reply was something along the lines of, the damage done to the nerves doesn’t “respond” to the bodies natural healing process the older we get and the longer we have MS, the longer the nerves are damage without getting the recovery phase, the more likely the damage is permanent/long term, and impacts more on the body.
Maybe this is where the term “progression” comes in ?
jactac…I reckon your neuro is spot on with his explanation of the MonSter.
Carole…Wet Wet Wet is one of my all time fave bands. Sweet little mystery is a great song…mmm…Marti Pellow…yes please.
Boudsx
Does this sound like you?
"With our aggressive campaigns of treat-early-and-effectively, treat-2-target, zero-tolerance, NEDA (no evident disease activity) I think we have exposed the real MS, i.e. smouldering disease. Almost all my follow-up patients were NEDA yesterday and doing ‘well’. However, when I interrogated them almost all of them had subtle symptoms and signs of disease worsening. Worsening fatigue, cognitive slowing, reduced walking distance, dropped feet on exertion, nocturia, sexual dysfunction, numbness and clumsiness of the hand, subtle unsteadiness of gait, poor balance in the dark and when tired, increased leg spasms at night, reduced auditory discrimination, problems with night vision, etc. "
My ‘Smouldering MS Clinic’ – Multiple Sclerosis Research Blog (multiple-sclerosis-research.org)
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I fully agree, but there is also another general rule for all people with a condition that reduces opportunities for getting out and about —“inactivity reduced health outcomes”
Research at Plymouth University has shown improvement for people using wheelchairs following a programme at home using standing frames. It is something that gets overlooked as we sort out our choice of DMTs, symptom management, diet and meaning of our MRIs. Not sure if some areas are better than others, but it seems to be overlooked.