Good morning everyone
I just wanted to ask a quick question to see if anyone has also experienced what happened to me last night. I was sat watching the Tele last night minding my own business when I decided it was time to go to bed. I went to stand up to find that my body didn’t want to move or go with me. I had gone completely limp from the neck down and unable to support myself. My poor husband, who is fortunately quite strong, had to carry me upstairs and lay me on the bed and then undress and redress me for bed like you would a baby. I had absolutely no control and wasn’t able to support myself or move anything. I think it freaked out my husband a little bit who didn’t sleep very well because he kept poking me all night to make sure I was ok.
I have RRMS.
I’m a bit more stable this morning and able to get around again, but being what was practically paralyzed from the neck down for those few hours has freaked me out a little bit.
Any comments or reassurance from anyone would be highly appreciated.
(I have recently moved back to the UK from Jersey so I’m still waiting for a neurologist (appointment booked for middle of December), nurse and any other support they can offer me. I also unfortunately ran it out of my DMD mid October and my doctor’s aren’t particularly keen on prescribing me any symptomatic medication until Ive seen a neurologist)