Hi, I’m Jen I’d like to start with sorry for the really long post…I have not typed this all in one go I’ve been writing it over a few weeks and been saving it into word on laptop.
I’ve just turned 32 and have mulitiple health problems which started over 10 years ago These inscude Under active thyroid, Unruptured brain aneurysm which is complicated and can’t be clipped or coiled (had that checked a year ot two ago and it hasnt changed) .and I got diagnosed a few years ago with fibromyalgia after few years ago after years of going backwards and forwards to doctors ect…(the fibro effected me alot but I could function mostly) I am now so much worse and can’t even make myself a drink anymore.
My recent problems began i’d say a year ago when I noticed randomly my right hand wouldn’t always do what I wanted it to trouble with handling small change,opening bus pass ect this got worse when under pressure or trying to do other things,Occasional pins n needles and numbness…I kinda just thought it was the fibro ect and thought nothing more of it…
8 months ago I started getting more problems with my mobility pins n needles in my toes again on right side again didn’t really think much of it…Then everything changed 6 months ago…I’d noticed I was dropping things more often especially in my right hand,and strange feelings like an electric bolt shoot through neck my right arm and hand which felt so painful I really thought someone had zapped me with something I shook my arm and it seemed to settle.
However the following evening I was holding a cup of tea relaxing watching a film when I realised I couldn’t actually let go of my cup.my boyfriend had to psycically move my hand for me…I started getting a kinda cold pins and needles feeling down my whole arm which wouldn’t go away when I shook it…due to my aneurysm we started panicking a bit as my hand started cramping/spasming up and It froze it would not move and my hand started going blue…Ended up with an ambulance as they thoought I might have been having a stoke or something…Long story short No one seemed to know what it was but I was in total agony with my hand spasmed up for over 2 weeks until I took an over dose of amitriptyline which finally released it.
Ever since It does it randomly and sometimes for no reason it happens more if I have a sudden movement I wasn’t expexcting or am startled I I have altered sensations I can’t tell cold from wet with it…cold water made me feel like I had been electricuted I have pins and needles and jerks twitches and my whole arm can actually spasm and freeze now…My left side has become afffected to but no where as near as bad as the right…I suffer severe brain fog and forget what I am going to say,get flustered easier and my emotions have gone really crazy…My walking has gone from bad to worse the only way I can descibe it as my legs feel drunk llike I can’t control them,I stagger and stumble alot and it is not only frustrating but embarrassing. Someone recently touched my hand and my leg flew up in the air.the past few weeks .My eyes feel odd It is hard to explain.things seem blury or like I am looking through a haze or underwater or something…from the sides I see double…Recently I got stuck on my bed as if my whole upper body had gone into a spasm
My gp is about as much help as a chocolate teapot but thankfully due to some of my other health probs I am finally being refered to a neurologist…I feel like I am going crazy sometimes…My gp and soe hospital staff made me out to be some sort of hypercondriac and thought I was making it up…Could it be Ms or am I totally losing the plot? I really hope the Neurologist will help me as I don’t know how much more I can cope with.