Hi everyone, my name is Laura and I am 25. I am currently off work and feeling very frustrated.
I started this unsettled journey in October last year when I was rushed to hospital with a suspected stroke. I felt incredibly heavy on one side and had facial droopness, my speech was slurred. My Mum took me to hospital and I was seen straight away but whilst I was there I found it hard to lift my leg or arm on the left side. I was sent for CAT scans and MRIs, a few days later. I was admitted and stayed on the stroke ward for a week, I was finally let home with a zimmer frame and walking stick. I then had 3 months off of work where I slept pretty much ALL day. During my time off, 1 month later in the November I was rushed back in to hospital with the same symptoms. I was sent home thankfully the following day, the Consultant there at the time said she would see me for Stress.
I managed to get an initial consultation with a Private Neurologist in London, I met him and my left side was still incredibly weak with impaired feeling. He agreed to see me under NHS and to run further tests, blood tests and MRIs with and without contrast dye.
I have had both tests back - in letter form but no follow up until July/August. A lesion has been found in my lower spine but the head MRI and contrast test has come back inconclusive, which is promising but I still have no clue what any of this means.
Today, I am sat at home with severe tingling (a regular reoccurring symptom) after 2 days of sleeping all day, I have been on the phone to MS society and they suggested reaching out to others. I find physical tasks exasperating, which really upsets me as doing anything with my 5 year old hard.
Other symptoms I have suffered is constipation, vertigo, falling over and recently I have had a really horrible feeling around my chest. It feels like someone has a belt around me and is pulling it really tight, followed by tingly ankles and legs up. I don’t always feel in control driving, quite spaced out.
To say I am scared is an understatement until I know what’s wrong I have to carry on as normal but am scared of my lack of ability and what to do about this…help please.