Hope all are well this lovely sunny morning?
There seems to have been some sort of admin issue with the Facebook Group “Lemtrada, alemtuzumab (campath) for treatment of MS in UK and Ireland” facebook group overnight which has resulted in this group being shut down.
For many considering, receiving or having had received lemtrada this group had been an invaluable source of info. It had c. 1000 members sharing their experiences (good and bad) of the treatment, swapping tips on different treatment centres and supporting each other through side effects. Through it I made contact with other people receiving treatment teh same week as me (at different hospitals) and the camaraderie of swapping photos of “the rash” made it a less lonely and fearful experience.
For this reason I’ve directed a number of people thinking about Lem on this site to the FB group. Thankfully, the fast thinking admins of the Group have set up a replacement page called “Lemtrada UK & Ireland” and we are all reconvening on there. So if anyone is trying to find the original (now closed) Group, please look for the group above instead.