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Just been diagnosed with MS

Hi all I’m a 27 year dad of 2 from Worcester. I’ve just been diagnosed with ms after I had pins and needles in my feet and legs. I had my 1st experience with this about 5 years ago I lost movement in my right arm and had pins and needles all over my body. Is the anything I need to know or do differently with being diagnosed with ms. Kind regards.

Hello Mitchy

Have a look at https://www.mstrust.org.uk/understanding-ms/newly-diagnosed-multiple-sclerosis There are lots of different webpages there to give you a bit more information about MS. It’s a hell of a thing to be newly diagnosed and know very little about it.

If you are being offered a disease modifying drug (DMD), then you could look at the various options on https://www.mstrust.org.uk/understanding-ms/ms-symptoms-and-treatments/ms-decisions/decision-aid You might not be eligible for a DMD though as I think the criteria are to have had 2 relapses within the last 2 years. But you may be able to get on a decent drug anyway, it will probably depend on how ‘active’ your MS is deemed to be.

Hopefully you have been given access to an MS nurse who can help you through the minefield that is MS. Otherwise, you can always come back here and ask for help from us.

Sue

Hi,

I would say you don’t need to do anything differently.

MS isn’t a condition that is caused by any particular lifestyle. It’s thought to be partly environmental and partly genetic in origin so carry on enjoying everything you do at the moment.

Regards,

Anthony

Thanks for replys, I’m on a 5 day course of steroids at the moment fingers crossed I only have a mild form but I guess everyone one hopes for this so why should I have it any better than anyone else.

mitchy

there is every reason for you to expect the best.

a young pup like yourself!

i started off with pins and needles.

they reckon that sensory symptoms have the best prognosis.

continue to live your life maybe with a couple of tweaks.

bet it’s a busy one with 2 kids.

enjoy them!

carole x

luckily I have family willing to help and my partner the childrens mom is being great looking after them whilst I’m tired can’t decide if it’s down to the ms or stress of it all.