my name is anne-marie and before i start I do apologise for the length of this post and the number of questions i have but I don’t know anyone in my life who has ms. I had a phone call from my neuro consultant yesterday to say that he had the results of my spine mri and he is sure i have ms. After 18 months of not knowing quite what is going on i finally know. this all started in Nov 2010 with my whole left side going numb and feeling strange sensations ( lasted approx 6 weeks ) I thought I had overdone things on one particular machine at the gym. Went to see GP for migraines initially but I also mentioned the numbness and he refrred me to neuro as a precaution.
Saw neuro consultant who did various tests, needles and using limbs for weightbearing etc. He also booked me in for a brain mri. Had brain mri and was called back as they had spotted some areas of inflammation on brain. So he said it’s likely to be ms because of my other symptoms. I remember crying at that point as I hadn’t really thought I could have this. He booked me in for an evoked potential eye test and a lumbar puncture. I really worried myself to distraction over the LP as I’ve heard such awful things about it and one slip of somebodies hand and you can end up paralysed. Anyhow I decided that I couldn’t go through with LP but had the eye test which came back normal and as I hadn’t had any other symptoms for the last 4 months the neuro consultant decided to sign me off.
Everything was fine untill just after xmas 2011 when the right hand side of my body around my abdomen, back area started to get shooting pains and burning feelings together with a horrible itchy feeling. There was no rash and I always felt as if I couldn’t relieve the itching as it felt deeper in the skin than it should be, ( i don’t know if anyone can relate to that ), then the whole of that area went numb and this awful pulling and pushing, sqeezing feeling has been left with me. I went to GP who said she thought I had had shingles and it was post neuropathic pain. I was 99% sure it wasn’t shingles but how could I argue? Anyway, she prescribed 900mg of Gabapentin per day and also referrred me back to neuro ( only because I pointed out that it seemed fairly similar to what I had before ). The gabapentin has controlled the abdomen feelings to a certain extent.
I saw neuro in Feb 2012 and had also started to get a weird feeling in my right arm, I can only descibe it as like having your blood pressure taken when the cuff gets to the tight bit and also pins and needles in my right thumb. He did the needle tests again and booked me for the spine mri .
I’m so terrified as I don’t know what sort of ms I have, since Feb my right arm has become much worse, I have such pain and stiffness in it together with the horrible tight feeling and pins and needles. Sometimes it feels like i’ve got weights on it and it’s being dragged down, Does anyone else have these feelings The feelings can be so intense they take my breath away. I’ve seen the GP but she has just doubled the dose of gabapentin. Unfortunately this has not eased the symptoms of my arm. Also, this probably sounds crazy, but has anyone had problems with their vision at night? I have found that when i wake up during the night i see the colour red. I’ve lost count of the times i’ve thought i’ve seen a cars rear lights shining into the bedroom when it’s just my vision going funny. Sometimes it’s like a red mist, other times it’s well defined shapes.
The consultant has referred me to a ms nurse so i’ll wait to hear from him/her. I feel as if i’m going downhilll fast. It’s frustrating as i am right handed and now can’t use my r/h properly, i can’t grip things, can’t write unless i do a 2 hand grip and am afraid to drive. In the last 2 weeks I’ve been suffering some incontinence but I don’t know if this is ms or the gabapentin. Has anyone on here suffered incontinence as a result of gabapentin?
Does anyone recommend any sort of medication that might relieve my arm problems?
I apologise again for my rambling and hope you’ve not gone to sleep reading this!!!