I have been bed bound for nearly 2 years with Crohn’s disease, Colitis and Duodenal ulcers which burst also I have had weight loss 4 stone in 2 years, and other syptoms I have which don’t go with the Crohn’s disease like I can’t walk due to my legs not being strong enough and shaking and on several occasions just completely giving away where I have fell and smashed my head on the floor, also my eyes are blurry and I have double vision which lasts for about 15 to 30 mins, I am constipated so much so it makes going to the toilet the scarest thing to do, my right arm shakes that I can’t control it and my right knee is numb. I have so much wrong at the moment I have mentioned these syptoms to my doctor and he says we need to sort out my other problems first, I’m scared to walk anywhere in case my legs give way usually my right leg is worse. I don’t no what to do at the moment there is other things to like headaches can’t sleep so any advice would be much appreciated thank you x
hiya
just noticed you have had no replies. i have lost 5 stone in less than 2 years-scary. do u have a diagnosis of ms? i wasnt sure from ur post-sorry.
ellie
Im so sorry that your dealing with all that hunni, I would tell your doctor again how much its distressing you. I hope you get to the bottom off it Krissy xx
Sounds like these things need to be dealt with at the same time x
[quote=“chocorange”]
hiya
just noticed you have had no replies. i have lost 5 stone in less than 2 years-scary. do u have a diagnosis of ms? i wasnt sure from ur post-sorry.
ellie
[/quote] Thank you for replying, I have lost lists of weight in last 2 years as I have Crohn’s disease also which causes problems and has had me bedbound for nearly 2 years as they cannot get treatment right and the crohns has given me lots of other problems too. Now I have this other worry or my legs and eyesight so just don’t no what to do
I am being sent for a bone scan now as they think the crohns may have affected my bones, but that wouldn’t explain my eyesight going and my legs feeling numb and just giving way on me with no warning, it’s now happened twice and also yesterday my right arm went stiff I couldn’t lift it and had terrific pain in it it lasted for about 15 Minutes, just scary when u don’t no what’s going on x
ask your gp to refer you to a neurologist once your other problems have been dealt with.
its a horrible place to be this limbo.
make a list of your symptoms, when they started, when they cleared up (if).
this will be useful to take with you if you get an appointment with a neuro.
we all understand here.
look after yourself and hang on in there,
carole x
[quote=“pigpen”]
ask your gp to refer you to a neurologist once your other problems have been dealt with.
its a horrible place to be this limbo.
make a list of your symptoms, when they started, when they cleared up (if).
this will be useful to take with you if you get an appointment with a neuro.
we all understand here.
look after yourself and hang on in there,
carole x
[/quote] Thank u so much, I have to use a wheelchair as it is as I also have copd which is a lung problem so can’t breathe when I walk and so on. The crohns is very bad and now these other problems have started, can it cause major headache too like so bad it feels like your head is going to explode as I get that too
aw hun
multiple sclerosis can be a scary beast but you seem in a far worse state.
so i’m sending you ((((hugs)))) and kisses xxxx
carole x