Hello all, I’m so glad to have found this forum!
Recently diagnosed following a few months of debilitating double vision and nystagmus (which have now gone away). My brain MRI showed new and old lesions and inflammation. Last week I had a lumbar puncture, spine MRI and blood tests but my neurologist said these won’t change the diagnosis, more that the results will be used as a baseline for the future. I see the MS team for the first time in June.
I was absolutely fine about it until this morning when I had to call in sick to work as I’m having such bad headaches following the lumbar puncture. I spent all weekend in bed missing time with my daughter who is too young to understand what’s going on but old enough to be sad that I can’t play with her. My husband has been utterly amazing but is shattered as he’s had to do everything. I’m in a new job which I love but really worried about the amount of time I have taken off for appointments and now today. My boss knows and has been very supportive, but I’m still worried that I might not make it through my probation if my absence levels continue. If that happens we are totally screwed as my husband doesn’t earn anywhere near enough to support us.
So I guess today it has hit home. I purposefully haven’t done a lot of research as I want to wait until my appointment. I hope that once I’ve recovered from the lumbar puncture I’ll be symptom-free for a while but who knows?
I’m so worried and so upset, I feel like I’m letting everyone down and hate that something so new is already having such a profound effect on us all. I should stop the pity party but it’s bloody hard with this headache!
Thanks for listening everyone, hope you all have a good week.