I have recently read that cancer occurs more in people that are already being treated with immunosuppressants. I take Rebif and have just been diagnosed with breast cancer, which was ot in our family at all. Are our immunosuppressants so dangerous, or could this just be a coincidence do you think?!?! I am totally foxed.
But as with MS, please don’t blame anything you’ve done!
First off, Rebif is NOT an immunosuppressant anyway. It’s an immune system modifier, which is different.
Secondly, I think the lifetime risk of cancer (any type) is about 1 in 3 anyway, which means it’s sad but true that you don’t need any special risk factors to end up with it. About a third of us will - the vast majority having never taken Rebif - or anything like it.
Finally, I don’t know how long you’ve been on Rebif, but even if it was a risk factor (which I’m sceptical of), I believe most risk factors take years or even decades for the harm to materialise. E.g. people with smoking-related cancer get it after a lifetime - NOT after their first few months of ciggies.
So unless you were one of the very earliest to have been offered Rebif, I wouldn’t have thought it would have had time, yet, to do what you suspect of it.
I’m sure it’s just coincidence. You’ve got enough on your plate, without thinking you somehow caused it. I’m sure you didn’t!
Thank you to Teresa, Mrs. H, Teresa & Tina for your replies. Tina, I hope that you are right about the Rebif, as I am even begining to sneer at the stuff, thinking that this might be to blame for my downfall. I am trying to stay positive though. This isn’t always easy as like this afternoon I was 'phoned by the hospital where I was due to have my second chemo on Monday; telling me that I might even have to miss it as my white blood cells are too low. Wasn’t chemotherapy once/still is used as a treatment for MS?
Thanks for your kind wishes. I am really hoping that my white blood cell count goes up so that I can have the second of six chemo blasts that I have to have. I don’t really know how to help this blood cell count along except for resting and thinking of England. Wish me luck for Monday, and it’s great news about your sister!
So sorry to hear about your dx and wish you all the best and hope your blood cell count does what it should. Sending (((((HUGS)))) and will be thinking of you.
I’m still keeping my fingers crossed for this chemo session to go ahead tomorrow, even though I feel like pooh when I have it. It tomorrows cycle goes ahead then at least I can think that I am a third of the way through them.
Please use your Rebif with your previous enthusiasm(?) though - it’s not to blame. As Tina said, it’s not an immunosuppressant, and because it’s been around for quite a while now, if it were to blame, there would be a heck of a lot of cancer cases in Rebif users and there aren’t.
Thank you to all who replied. I went for my second infusion/cycle yesterday and my white blood cell cound must be better as I had the treatment. As least now I am a third of the way through the course, having had two of the six. I feel far less sick too as the oncologist has put me on different anti-emetics which seem to do the job.
I am still mystified as to whether chemotherapy is still used to treat MS as it used to be, but perhaps this was in the dim and distant past.
That’s brilliant news Moira, am really pleased for you, let’s hope the rest of your treatment goes without any hitches. Sending you (((((HUGS))))) and all the luck in the world, will be thinking of you. Take care.
I had to have a dodgy mole tested recently and the GP said “you should have expected things like this having been on immunosuppresants” - I have not been taking rebif but another beta-interferon. Luckily my mole was okay. I had to stop taking the DMD because it was causing limb swelling each time I injected into a thigh muscle - its incredibly difficult to walk with swollen legs! The neuro has now ruled out all the beta-interferons for me…