My partner, was dx with epilepcy, and was given epeiesenter. He was then told, after that was not working, that he was non-epileptic due to stress. Because his brain activiy is normale, people have told him it might be ms. As he has symtoms but the doctors havnt pick up on this, not only dose he have seizures but he blacks out, he temporariley losses the use of limbs, he has a lot of unexlaned pain, problems with he’s eye, bowels, and the list gose on, could this be a missdiagnosis?
Hi Billyswife,
MS does not typically cause blackouts or seizures. I say “not typically”, because it’s such a variable disease there’s probably nothing it hasn’t caused somewhere, in someone. People with MS are slightly more likely to have epilepsy, but as the epilepsy diagnosis has already been withdrawn, MS-related epilepsy doesn’t seem very likely here.
MS can, and often does, interfere with use of limbs, but when you hear about “temporary” symptoms of MS, it usually means the person has relapsing remitting type, and they have episodes lasting days, weeks, or even months - not usually moments or hours.
I would be the first to admit that “stress” CAN do weird things to the body, but blacking out seems a bit excessive. Is your husband rather stress-prone, or is this out-of-character?
If you are not happy with the explanations so far, I think you need to start asking the GP: “What else might it be?”, and pushing for a referral. I don’t think it would be helpful to go in there saying that you think it might be MS, as GPs tend not to like patients who self-diagnose, and it may well be seen as evidence that their problem IS, in fact, anxiety. I think you need to go in as open-minded as possible, not saying what you think it might be. Make sure to mention ALL the symptoms, and say you’re not happy that this is just “stress”: “What else might it be?”.
GP should take it from there.
Tina
Hello, and welcome to the site 
There are actually a lot of possible causes of your husband’s symptoms, but there’s no way of knowing what it is until you get everything properly investigated. I suggest you make a list of the main symptoms and see your GP. Go together - it’s helpful to have two pairs of eyes and ears (and two mouths!). It can be easy for GPs to not “join the dots”, i.e. to treat individual symptoms without considering that there may be a common cause. This tends to happen because people come to the GP with one thing at a time. So break that cycle - tell the GP all of it in one go. And maybe suggest that, given the blackouts, a referral to a neurologist seems the best place to start.
Keep an open mind about what the cause might be though - MS is just one of literally hundreds of conditions that cause some of the symptoms that you describe.
Good luck.
Karen x
Hi - non-epileptic seizures can be caused by stress and non-organic illness. They are quite common amongst people with functional neurological disorder. If you look at www.neurosymptoms.org you may find some symptoms which you recognise in your partner. You will still need to make sure he is fully checked out just in case this is wrong but it may help to give you some assurance. There is also a functional neurological disorder page on facebook and they may be able to help you more as I don’t really know too much about seizures.
Good luck!