Hi everyone, I am wondering if you can give me some advice. To cut a long story short, I have been having symptoms now for 3 years. I used to run and indeed ran the London Marathon so was fit and active. I have had 3 MRIs which show "numerous lesions in cerebal white matter inc. some juxtacortical or periventicular + to the right of the 4th ventricle and a plaque on the right side of the spinal cord. C2 and C6/7. I have significant weakness on my right side and muscle spasm, weakness etc. I also have a very stiff right shoulder muscle for which I am having physio and have had this electric shock like nerve sensation for about 6 months when I put my head down. I have been prescribed Gababentin but decided not to take them because it is not really pain but a sensation which I can live with. What concerns me though is that - could it be something else? Should I ask for a chest xray? I am not getting neurotic but the fact I have only been diagnosed with Probable PPMS keeps me wondering what is missing, why cant he diagnose - I think I have both brain and spinal cord and if this is L’Hermittes , then it is another attack? Not knowing for sure is the worst thing.
I have had a clear Lumbar and bloods and nerve conduction study showed carpal tunnel syndrome which I don’t actually think I have because I don;t have any pain. Bascilly should I just accept “come back in 6 months” or should I be asking for other tests/x rays to confirm what my right shoulder pain really is?
Thanks for listening.