Despite being formally diagnosed privately (it was definite enough to get pay outs on my two critical illness insurance policies!) the NHS neuro now wants to do everything again - that’s another MRI, full bloods, new chest X-ray (to rule out sarcoidosis) and is trying to persuade me to have a lumbar puncture!
I think this is a complete waste of time and money, but he won’t do anything DMD wise until he’s had all these results. The one I’m really arguing with is the LP as I just don’t want to go through it and I know it’s not necessary. I’m all for being thorough, but this seems extreme. He even said I definitely fit the diagnostic criteria for MS now!
Is this normal? I feel as of I’ve gone three steps back after just starting to come to terms with my diagnosis?!
Oh well, more waiting, more tests, more frustration!