Simple, but effective, way of explaining some of our symptoms.
I expect that all the food was tasteless or had peculiar smells and that there was a constant whine, like mosquitoes. All the smooth surfaces should feel like sandpaper and all the rough ones have no grip. Just another day in Paradise.
Thanks Derek, very interesting indeed. All people who work for NICE or represent NICE & Government, should have to experience this, and more obstacles to gain understanding of our plight.
A brilliant way to give insight to non M.S. people. I’d like to think more MSunderstood Cafe’s will be available in more locations. It’s a great way for our family & friends to experience constant obstacles.
A.D suggests food, white noise & surfaces. Add incorrect change, move coats or other belongings to a different area? Drink sufficiently to fill the bladder but no access to the toilets except to use the key kept in the till. Hmmm, maybe that last suggestion is a bit too far.I
Not in the slightest. I was in a pub, just like that, last Monday.
And I had to take the key all the way back to the bar afterwards!
Interesting indeed Derek, I think anything which increases awareness without bleating on about it must be useful. I once did an autism awareness course and we had to wear distorting spectacles, be subjected to lots of white noise and wear 1 mitten whilst trying to listen to instructions and carry out simple tasks.
It was pretty stressful and very frustrating but did give glimpses to understand a bit about what might cause certain behaviours.
If all we experience is good health and a fully functioning mind and body we can not be expected to perceive things from a different perspective.
This makes me slightly less judgmental when some idiot able bodied person behaves thoughtlessly… they are still an idiot but I try to cut them a bit of slack. (although if they catch me at the “wrong” time I still let go with both barrels… in my head at least.)
I can see the point, and it can only be a good idea, but at the same time I feel sorry for anyone with MS that wandered in unknowingly!