Hi
Does anyone know the name of the IV infusion they give once every six months please? I had an appointment today and so much was said and I don’t remember half of it.
Also when they say active lesions can someone explain exactly what they mean as apparently I have active lesions.
Thanks
Emma
Hi Emma,
An MRI scan can differentiate between active and non-active lesions. Active lesions show up in the MRI scan as white patches. If the lesion doesn’t light up then its likely an older lesion and more than 3 months old.
The size and shape of ms lesions can vary and they can affect different areas of the central nervous system.
Lesions can interfere with normal functions of the nerve cells, blocking or slowing normal electrical communication or nerve impulses in the brain and spinal cord - this can directly contribute to MS symptoms depending on the location of the lesion(s) but not all lesions cause obvious symptoms.
Depending on where the lesion(s) some of the symptoms may be:
Muscle weakness, stiffness, spasms
Numbness or tingling in: face, arms, legs, trunk
Vision problems
Loss of corordination and balance
Persistent dizziness
Issues controlling your bladder
Vision problems (optic neuritis)
With regads to the 6th monthly infusion I think it is Ocrevus (ocrelizumab); I’m due to have my 1st infusion of this on 02.02.23 having been on my previous dmt for over 20yrs.
If you do opt for it then maybe we can catch up on here about how we’re both doing?
Take care
Vicky