Ive come back for some advice if thats ok ,i have had numerous MS type symptoms for years .Saw nuro back in aug took list of symptoms and a mate, nuro ignored list wouldnt even look at it and because i started crying and said i was scared as far as he is concerned its a psychology problem , i manged to compose myself and carry on ,he done a few checks and said my problem is not nuro but done mri on brain and neck anyway but said he expected it all to come back normal , went to follow up app, he said everything was ok and because radiographer said mri was ok he didnt see the point in looking , he recommended i get put on amitrypline which ive now been put on . whithin 2 weeks of discharge from nuro i woke up one morning incontinent and severe back pain, got admitted to hospital overnight thinking i had equina cauda luckily , had emergency mri on spine i have a l4 l5 disk bulg ,but my incontinence is not connected to my back , so yet another symptom that goes with the undiagnosed stuff . i have app in jan with urology .does anyone know what i should do ? should i try and get another opinion or just take what nuro says as gospel . any ideas much appreciated x
Hi Destiny - please tell us about the symptoms you have had in the past as it will give a bigger picture. Is it definite that your incontinence isn’t caused by the disc problem? Who said so? Back problems commonly cause bladder difficulties.
Deb
Hi Not going to bore you with details…I bore myself…but despite being diagnosed, I did not receive the help I would have expected from my neuro, so my gp has re referred me to another. Always worth it, if you are not satisfied.
Ive just returned from the gp , referral has been sent to nuero 3 days ago.Gp doesnt think its MS because my symptoms are non specific and it didnt start in my eyes no doble vision , although i do get a pain in eye , gp thinks maybe fibromyaglia although she doesnt know . I have been getting problems with balance , poor muscle tone in legs , hearing problems , I have menires disease for about 10 yrs , had my first episode of numbness in face and feeling the skin was hanging down my face about 15 years ago which i had a brain scan was told not MS and that was the first time i had even though about it . over the years more and more things have happened although could always put it down to other things ,meniries ,problems with legs etc . now iam still none the wiser and fed up . It seems everytime i come to terms with the feelings something else happens ,
Recent episode . numbness in legs ,feet and hands , pins and needles ,feeling of something is stuck in my throat ,although i know there isnt . feeling like iam being pushed back when i walk ,and tightness in my chest ,not feeling iam aware also knocking into things and feeling like iam tripping over things that arent there .
Ive just returned from the gp , referral has been sent to nuero 3 days ago.Gp doesnt think its MS because my symptoms are non specific and it didnt start in my eyes no doble vision , although i do get a pain in eye , gp thinks maybe fibromyaglia although she doesnt know . I have been getting problems with balance , poor muscle tone in legs , hearing problems , I have menires disease for about 10 yrs , had my first episode of numbness in face and feeling the skin was hanging down my face about 15 years ago which i had a brain scan was told not MS and that was the first time i had even though about it . over the years more and more things have happened although could always put it down to other things ,meniries ,problems with legs etc . now iam still none the wiser and fed up . It seems everytime i come to terms with the feelings something else happens ,
Recent episode . numbness in legs ,feet and hands , pins and needles ,feeling of something is stuck in my throat ,although i know there isnt . feeling like iam being pushed back when i walk ,and tightness in my chest ,not feeling iam aware also knocking into things and feeling like iam tripping over things that arent there .
Actually I’m on 2nd opinion as well - it’s surprisingly common. You won’t settle until you get confirmation so go for it. xx
It just gets annoying as i keep feeling like iam banging my head against the wall . for over a decade ive had the problems last year symptoms have come back with avengence ,then it feels like its getting better then its back, it feels like 2 steps forward and 3 steps back.
i actually gave up and resided to being undiagnosed ,yesterday i spoke to a friend who i havent spoke to about my problems ,i havent spoke to him for a few months, he has been diagnosed with MS and i mentioned some of my problems but never mentioned i thought it was ms he told me to go see my doc as some of my symptoms are errily like his .
I feel so confussed as what to do ,dont want to be thouht of as someone who is always at the docs .
MS does not necessarily affect the eyes at all. A number of us on here have no problems with our eyes at all. Teresa xx
Tree is absolutely right about the eyes so that doesn’t stand. I think you should look at the neurosymptoms.org website - the lump in throat and tightness of chest, plus all 4 limbs being involved just makes me wonder if this might be what’s wrong on top of the disc problem. Have a look. Dxx
Sorry you’ve not had any joy with the neuro. To be fair, most neuros rely on the radiology report because neuros are experts in clinical symptoms & signs and radiologists are experts in looking at MRI scans. As Deb says, the fact that your symptoms seem to affect your whole body at the same time, but then go into remission, doesn’t sound like MS. That doesn’t mean that there isn’t something going on, but it does sound like it’s something other than MS.
I hope the new neuro is more successful at working out what’s going on. Don’t give him/her the list btw. It’s for your benefit, not the neuro’s, to make sure that you don’t forget anything important. Also make sure to focus only on the main symptoms. A long list of symptoms tends to make most neuros lose interest fast 
Good luck.
Karen x
Hi it doesnt affect my body all at the same time , iam sorry i haven t explained properly , i get electric shocks down my arm and leg (right side ) have jelly legs . majority of my problems are on the right side .i have problems from my hips down due to the way i have been born and have meniries so alot of things i have put down to these things ie: balance ,problems with legs .i get severe fatigue , headaches pins and needles in arms and legs .
Hi it doesnt affect my body all at the same time , iam sorry i haven t explained properly , i get electric shocks down my arm and leg (right side ) have jelly legs . majority of my problems are on the right side .i have problems from my hips down due to the way i have been born and have meniries so alot of things i have put down to these things ie: balance ,problems with legs .i get severe fatigue , headaches pins and needles in arms and legs .