# I was doing so well... **URL:** \ **Category:** Primary progressive MS\ **Created:** [19 June 2014 15:52 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520 "2014-06-19T15:52:32Z")\ **Posts on this page:** 11\ **Page:** 1
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [19 June 2014 15:52 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/1 "2014-06-19T15:52:32Z")
I was doing so well, I was back to walking, I had finished at physio and had all these grand plans with regards to walking. One tiny inner ear infection and I am back at square one! This is one of the mst frustrating diseases. I felt really positive and like I was back on track. It is really hard to believe when things are going well as you have the thought going through your head that this can only be for a short while. Sulk! ---
**Author:** ![Min](https://avatars.discourse-cdn.com/v4/letter/m/7c8e57/32.png) [@Min](https://forum.mssociety.org.uk/u/Min)\ **Post date:** [19 June 2014 17:13 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/2 "2014-06-19T17:13:37Z")
Don’t lose heart, infections do make things worse but you should improve again once the antibiotics take hold. You’re right, it’s a cruel illness and it knocks the stuffing out of us on a regular basis but we’re stronger than we look, and you’ve got a lot of moral support here. xxx ---
**Author:** ![nindancer](https://avatars.discourse-cdn.com/v4/letter/n/cc9497/32.png) [@nindancer](https://forum.mssociety.org.uk/u/nindancer)\ **Post date:** [19 June 2014 19:29 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/3 "2014-06-19T19:29:18Z")
Aw sweetie, I think we’ve all had experience of the “knocking you sideways” effect of an infection. A few months ago, my MS nurse even referred to a “pseudo relapse” as I was terrible! Take care and really hope you feel better soon Sonia x ---
**Author:** ![Snow\_Leopard](https://avatars.discourse-cdn.com/v4/letter/s/e79b87/32.png) [@Snow\_Leopard](https://forum.mssociety.org.uk/u/Snow_Leopard)\ **Post date:** [19 June 2014 20:10 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/4 "2014-06-19T20:10:30Z")
You’ll get back to where you were. Infections or viruses always send MS off the scale, but it’ll settle down again. Hang on in there, Pat xx ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [20 June 2014 16:54 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/5 "2014-06-20T16:54:49Z")
Thanks for your lovely comments. I have been feeling dizzy for about three weeks now and feel like there is a swirling vortex below me, horrible. The heat is not helping, it is unseasonably warm in Scotland right now! Is the heat affecting you guy too? ---
**Author:** ![Min](https://avatars.discourse-cdn.com/v4/letter/m/7c8e57/32.png) [@Min](https://forum.mssociety.org.uk/u/Min)\ **Post date:** [20 June 2014 17:03 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/6 "2014-06-20T17:03:13Z")
KW I’m one of the minority who tolerate the heat a lot better than the cold which is very nice now but the long winters get me down. I find fatigue a bit of an issue but I have much less pain in the warmth. I hope you all have a lovely weekend, it’s supposed to cool down a bit for you. Cath xx ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [20 June 2014 19:28 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/7 "2014-06-20T19:28:51Z")
Hi KW, I know what you mean about the heat in Scotland just now. It is even hot in Aberdeen. The heat is good for a lot of my symptoms but my legs and feet have swelled up. But I can’t complain as the cold is a killer for me. And as you know it can get get really cold up here. Hope you feel better soon. Mags xx ---
**Author:** ![Ninagrace7](https://avatars.discourse-cdn.com/v4/letter/n/779978/32.png) [@Ninagrace7](https://forum.mssociety.org.uk/u/Ninagrace7)\ **Post date:** [20 June 2014 20:37 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/8 "2014-06-20T20:37:14Z")
Hi KW, I hope by tomorrow you will be feeling a little bit better. 🙂 Nina x ---
**Author:** ![hoppity](https://avatars.discourse-cdn.com/v4/letter/h/8e8cbc/32.png) [@hoppity](https://forum.mssociety.org.uk/u/hoppity)\ **Post date:** [20 June 2014 21:34 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/9 "2014-06-20T21:34:47Z")
Hi ME hope you are recovering and soon back on your feet. I am in bed and have been all day co I felt sick last nigh 24 hours in bed and I wasn’t even sick GGGRRRR MS sucks. Get well soon. DON ---
**Author:** ![Snow\_Leopard](https://avatars.discourse-cdn.com/v4/letter/s/e79b87/32.png) [@Snow\_Leopard](https://forum.mssociety.org.uk/u/Snow_Leopard)\ **Post date:** [21 June 2014 10:54 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/10 "2014-06-21T10:54:18Z")
Hi KW, heat not too bad in London… in fact it’s rather cool but sunny… but yes heat can be terrible with MS. When it’s hot I live like a little mole… blinds down and fan on (although I don’t think moles use fans…). I suffer with dizziness too. It’s awful. Worth seeing the GP just in case it’s something else… even a build up of wax in ears can cause dizziness. Hope you’re feeling better soon, Pat xx ---
**Author:** ![Inactive\_User](https://avatars.discourse-cdn.com/v4/letter/i/3e96dc/32.png) [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Post date:** [22 June 2014 15:08 UTC](https://forum.mssociety.org.uk/t/i-was-doing-so-well/23520/11 "2014-06-22T15:08:55Z")
The heat is a little better today and I have bought ice lollies which alway help! Was out most of the day yesterday in my scooter just to get some air and convinced my partner to go out for a picnic for lunch today to get out of the house. Still struggling a bit with the dizziness though. Doctor thinks it is an inner ear infection so I am going to go with that.