I’ve been crying on and off since last night as I think it has finally hit me what the Neuro said last week that I may have MS.
My symptoms haven’t been good this week & i’m just worried & confused and really don’t know what to do.
I keep having this complete mental block, can be mid conversation that I just forget what I’m talking about, I then sit there desperately trying to think what it is but I can’t and it scares me so much, its as if someone has got a board rubber in my head & wiped everything away.
I’ve also been having a lot of trouble walking around, its as if someone is sitting on my chest or squeezing around the front and back so it makes standing up straight really hard,is this a common thing ?
Got bad hand shakes & my head hasn’t stopped being like a bloody nodding dog and my tongue feels too big for my mouth constantly & I feel like i’m slurring but hubby says i’m not.
Roll on MRI and then hopefully can start to get things a little clearer in my head.
Would there be any blood tests that would show up anything to do with MS, all mine have been relatively normal apart from ESR for inflammation ?
Hi BeccaK
Really big hug. Deep breath - just because the neuro says it might be MS doesn’t make it definite yet. The diagnostic process is long and other condtions which can give similar symptoms as MS are ruled out first. Even if you have MS it really doesn’t mean the end of the world. You can still have a happy enjoyable life - not everyone gets all the symptoms.
‘I’ve also been having a lot of trouble walking around, its as if someone is sitting on my chest or squeezing around the front and back so it makes standing up straight really hard,is this a common thing ?’ This sounds like maybe MS hug but not a 100% sure. I’ve had the hug and its felt like a tight corset round me or a belt and it feels very uncomfy and as if I couldn’t take a deep breath.
My ESR was also slightly raised but it really depends on how high and the better marker is CRP was this normal? There are no blood tests for MS. As a mentioned its a slow diagnostic process - MRI’s are first stage. If MS is suspected you may have something called a lumber puncture and evoked potentials.
Please try to relax, take each day as it comes. I know this is hard but stress can make your neuro symptoms worse. Believe me I know how you feel - at my second opinion last week the neuro thought what I have maybe MS and has referred me to a MS specialist. That’s after me seeing my first neuro (who was terrible) but did do a whole heap of blood tests and two MRI’s 6months apart.
Hope your get some answers soon and in the mean time try not to google and try to take things easy and most importantly we’re here for you.
Reemz
X
Sorry you are feeling like this at the moment,I think everyone on here can relate to the slap in the face of the possibility of ms.
At least by forewarning of the possibility it does give you time to adjust to the thought of having ms,and if it proves not to be and something that is treatable as least you can have a big sigh of relief…or slap him for scaring you.
Taking your mind off it I know is impossible,but finding ways to cope during the endless weeks of waiting for tests,and then follow ups,and then more tests etc is something you will benefit from developing.
Do you have friends and family who you can talk to to support you through this difficult time?
Take care
Pip